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"Quality of life"

Original Articles

Factors affecting the health-related quality of life of children with cerebral palsy in Indonesia: a cross-sectional study
Ade Febrina Lestari, Mei Neni Sitaresmi, Retno Sutomo, Firda Ridhayani
Child Health Nurs Res 2024;30(1):7-16.   Published online January 31, 2024
DOI: https://doi.org/10.4094/chnr.2023.027
Purpose
Children with cerebral palsy (CP) and their parents experience various problems that can affect their quality of life. This study examined factors affecting the quality of life of children with CP.
Methods
A cross-sectional study was conducted in Yogyakarta, Indonesia, from January to August 2019. The participants were consecutively recruited children with CP aged 2 to 18 years and their parents. Ninety-eight children with CP and their parents, specifically their mothers, were recruited. Children’s health-related quality of life (HRQoL) was measured using the Pediatrics Quality of Life Cerebral Palsy. Parental HRQoL and stress were measured using the WHOQOL-BREF and Parenting Stress Index (PSI).
Results
Functional level V was the most common category for both Gross Motor Function Classification System (GMFCS) and Bimanual Fine Motor Function (BFMF) (35% and 28%, respectively). Children’s mean HRQoL was medium (49.81±20.35). The mean total PSI score was high (94.93±17.02), and 64% of parents experienced severe stress. Bivariate analysis showed that GMFCS, BFMF, number of comorbidities, presence of pain, and parental stress were significantly correlated with the total score for children’s HRQoL (p<.05). Multiple linear regression analysis (p<.05) demonstrated that more severe GMFCS and parental stress were associated with lower mean HRQoL scores in children.
Conclusion
Factors including the level of GMFCS and parental stress affected the HRQoL of children with CP. Parental stress management should be included in the comprehensive management of these children.

Citations

Citations to this article as recorded by  
  • Proxy- and self-report evaluation of quality of life in cerebral palsy: Using Spanish version of CPQOL for Children and adolescents
    Alba Aza, Inmaculada Riquelme, María Gómez Vela, Marta Badia
    Research in Developmental Disabilities.2024; 154: 104844.     CrossRef
  • Cerebral palsy: potential risk factors and functional status among children under three years, a case-control study in northwest Iran
    Morteza Haramshahi, Vahideh Toopchizadeh, Samira Pourzeinali, Neda Nikkhesal, Tahereh Sefidi Heris, Azizeh Farshbaf-Khalili, Shirin Osouli-Tabrizi
    BMC Pediatrics.2024;[Epub]     CrossRef
  • 3,082 View
  • 92 Download
  • 2 Crossref
Health-related quality of life in children with epilepsy: a concept analysis
Sinyoung Choi, Kyung-Sook Bang
Child Health Nurs Res 2023;29(1):84-95.   Published online January 31, 2023
DOI: https://doi.org/10.4094/chnr.2023.29.1.84
Purpose
This study aimed to conduct a concept analysis of health-related quality of life in children with epilepsy to promote conceptual clarification and facilitate mutual understanding of the concept.
Methods
Walker and Avant's concept analysis method was adopted.
Results
Health-related quality of life in children with epilepsy consists of six attributes: health status, inner strength, close relationships, resource-rich community, social acceptance, and changeability. According to the ecological system paradigm, these attributes are structured into five dimensions: organism, microsystem, macrosystem, exosystem, and chronosystem. These dimensions provide a comprehensive approach to the relationship between children with epilepsy and their environment. Epilepsy and interactions with multilevel ecological systems that are directly and indirectly related to children with epilepsy precede the concept, followed by positive and negative affective responses.
Conclusion
The findings of this study may support effective communication in various practice settings, thereby contributing to the health and well-being of children with epilepsy, as well as the development and expansion of interventions to improve their health-related quality of life.
  • 4,223 View
  • 206 Download
Purpose
This study aimed to examine body image, self-esteem, and quality of life (QOL) in children and adolescents with Inflammatory bowel disease (IBD) and to analyze factors influencing QOL.
Methods
This descriptive study involved 87 participants at a tertiary hospital aged 10 to 18 years who were diagnosed with IBD. Body image, self-esteem, and QOL were measured. Descriptive analysis, the independent t-test, the Mann-Whitney U test, analysis of variance, Pearson correlation analysis, and stepwise multiple regression were used for data analysis.
Results
The average score was 16.95±3.55 for body image, 31.32±5.25 for self-esteem, and 78.64±15.98 for QOL. Height, weight, hospitalization experience, current symptoms, and consumption of oral steroids showed statistically significant effects on QOL. The most significant predictors of QOL were self-esteem (β=.31, p=.002), body image (β=.28, p=.005), number of symptoms (β=-.25, p=.004), and number of hospitalizations in the last year (β=-.24, p=.004).
Conclusion
To improve the QOL of children and adolescents with IBD, it is necessary to evaluate self-esteem, body image, and physical problems. In addition, various intervention strategies to improve self-esteem and body image and to reduce physical discomfort should be developed.

Citations

Citations to this article as recorded by  
  • Self-perception and adjustment to Crohn's disease in emerging and young adults: The clinical and psychosocial associated factors
    Nathalie Touma, Carolina Baeza-Velasco
    Pratiques Psychologiques.2025; 31(1): 41.     CrossRef
  • Repercussões das Doenças Inflamatórias Intestinais no Desenvolvimento Socioemocional de Pacientes Pediátricos
    Cleicione Rosa de Oliveira, Patrícia Alvarenga, Catiele Paixão
    Revista Psicologia e Saúde.2023; : 93.     CrossRef
  • Association between Childhood Onset Inflammatory Bowel Disease and Psychiatric Comorbidities in Adulthood
    Andreea Sălcudean, Andreea Georgiana Nan, Cristina Raluca Bodo, Marius Cătălin Cosma, Elena Gabriela Strete, Maria Melania Lica
    Diagnostics.2023; 13(11): 1868.     CrossRef
  • Quality of Life Among Children with Inflammatory Bowel Disease in Saudi Arabia: A Cross-Sectional Study
    Abdulaziz A Alahmari, Sarah H AlShawaf, Huda A Meshikhes, Bedour A Aleid, Raghad M Aldossari, Marwa M Shafey, Ahmed A Aladsani, Abdulazeem A Al-ibraheem, Nawal M AlRubia, Saleh A AlQahtani
    International Journal of General Medicine.2022; Volume 15: 8775.     CrossRef
  • 5,642 View
  • 278 Download
  • 4 Crossref
Health-related quality of life of children and adolescents after hematopoietic stem cell transplantationa
Yu Min Hwang, Kyung-Sook Bang
Child Health Nurs Res 2020;26(4):402-410.   Published online October 31, 2020
DOI: https://doi.org/10.4094/chnr.2020.26.4.402
Purpose
This study aimed to determine the level of health-related quality of life (HRQoL) of children and adolescents who received hematopoietic stem cell transplantation (HSCT) and to examine factors influencing HRQoL.
Methods
This cross-sectional descriptive study involved 85 participants aged 10 to 19 years who received treatment from 3 months to 5 years after HSCT. Symptom experiences, stress and coping, self-esteem, social support, and HRQoL were measured. Descriptive analysis, the independent t-test, one-way analysis of variance, Pearson correlation analysis, and stepwise multiple regression were used for data analysis.
Results
The mean HRQoL score was 72.26 points out of 100. HRQoL showed statistically significant correlations with symptom experiences, stress, self-esteem, social support, satisfaction with peer relationships, and perceived attentiveness of the medical team. The most influential predictors of HRQoL were symptom experiences (β=-.51, p<.001) and satisfaction with peer relationships (β=.32, p<.001).
Conclusion
The experiences of different symptoms by children and adolescents who receive HSCT must be considered. In addition, nursing interventions, such as self-help meetings with peer groups, should be provided to improve their HRQoL.

Citations

Citations to this article as recorded by  
  • Body image, self-esteem, and quality of life in children and adolescents with inflammatory bowel disease in a tertiary hospital in South Korea
    Da Jeong Kum, Kyung-Sook Bang
    Child Health Nursing Research.2021; 27(2): 181.     CrossRef
  • 5,663 View
  • 254 Download
  • 1 Crossref
The Association between Hope and Quality of Life among Adolescents with Chronic Diseases: A Systematic Review
Ai Mardhiyah, Koshy Philip, Henny Suzana Mediani, Iyus Yosep
Child Health Nurs Res 2020;26(3):323-328.   Published online July 31, 2020
DOI: https://doi.org/10.4094/chnr.2020.26.3.323
Purpose
Hope has been identified as a protective factor that contributes to achieving a better quality to life, especially in patients with chronic disease. The purpose of this review was to synthesize current knowledge about the relationship between hope and quality of life among adolescents living with chronic illnesses.
Methods
We searched major English-language databases (PsycINFO, PubMed, and CINAHL) for studies from January 1, 2002 to July 12, 2019. Studies were included if they provided data on hope and its relationship with quality of life among adolescents with chronic diseases.
Results
In total, five articles were selected from the 336 studies that were retrieved. All five studies reported a positive correlation between hope and quality of life, such that people with a higher level of hope had a better quality of life. Hope was found to have direct and indirect effects on quality of life in adolescents with chronic diseases.
Conclusion
Healthcare professionals should make more efforts to enhance hope in adolescents with chronic diseases in order to improve their quality of life. Future studies exploring how hope develops in adolescents with chronic diseases and the long-term impact of hope on quality of life are necessary.

Citations

Citations to this article as recorded by  
  • Beyond the Visible: The Relationship Between Social Appearance Anxiety, Hopelessness, and Depression in Women with Urinary Incontinence
    Serap Canlı, Yeşim Çetinkaya Şen, İlknur Münevver Gönenç, Ayfer Tezel
    International Urogynecology Journal.2025;[Epub]     CrossRef
  • Quality of Life, Self-Esteem, and Stress among First-Semester Student Nurses in Indonesia: A Cross-Sectional Study
    Maria Komariah, Theresia Eriyani, Laili Rahayuwati, Hana Rizmadewi Agustina, Furkon Nurhakim, Irman Somantri, Shurouq Ghalib Qadous, Aurawan Janmanee, Nina Gartika
    SAGE Open Nursing.2025;[Epub]     CrossRef
  • Lessons From the Past, Hope for the Future: A Qualitative Study on the Lives of Leprosy-Affected Residents of a Leprosy Settlement in Malaysia
    Norana Abdul Rahman, Vaikunthan Rajaratnam, Noor Hanis M. Rafee, Cynthia Ramachandran, Ruth M. H. Peters, Karen Morgan, Mohamed Rusli Abdullah, Marjolein B. M. Zweekhorst
    Qualitative Health Research.2025;[Epub]     CrossRef
  • Exploration of Hope Among Young Adults with Cancer in Malaysia
    Sahira Sabri, Nur Atikah Mohamed Hussin, Weng-Tink Chooi
    Journal of Adolescent and Young Adult Oncology.2024; 13(1): 213.     CrossRef
  • Translation and cultural adaptation of “Glasgow Children’s Benefit Inventory” into Brazilian Portuguese
    Caroline Catherine Lacerda Elias, Adriane Ribeiro Teixeira, Maria Eduarda Claro de Souza, Letícia Petersen Schmidt Rosito, Sady Selaimen da Costa
    Brazilian Journal of Otorhinolaryngology.2024; 90(1): 101353.     CrossRef
  • Effect of Language Barriers and Use of Interpreters on Hope Among Patients With Central Nervous System Malignancies and Bone Metastases
    Caressa Hui, Jen Hall, Zhihui Fang, Sydney Lefebvre, Melanie Hayden-Gephart, Gordon Li, Antonio Meola, Seema Nagpal, Scott Soltys, Erqi Pollom
    International Journal of Radiation Oncology*Biolog.2024; 119(3): 838.     CrossRef
  • Based on the relationship between anxiety of existential meaninglessness, hope level, and fear of progression, explored the effect of preoperative nursing with Orem theory in the senile cataract population
    Yanli Zhang, Yanmiao Cheng, Yan Liang, Mengfei Shao, Aiai Chen
    Frontiers in Psychology.2024;[Epub]     CrossRef
  • The relationship between anxiety and depression in adolescent depression patients: The mediating effect of hope level and coping modes
    Yan Lin, Zhihan Chen, Mengjiao He, Weiqing Zhou, Lina Wang, Hua Guo, Kaizong Huang
    Heliyon.2024; 10(15): e35466.     CrossRef
  • Hope as Perceived by Children and Adolescents During the COVID-19 Pandemic
    Kaye A. Herth
    Pediatric Nursing.2024; 50(1): 17.     CrossRef
  • Concept Analysis of Resilience in Adolescent Living with HIV: Review of Limitations and Implications
    Indita Wilujeng Astiti, Iyus Yosep, Taty Hernawaty
    JURNAL INFO KESEHATAN.2024; 22(1): 190.     CrossRef
  • Voices of Hope: Leveraging Think-Aloud Cognitive Interviews to Develop a Hope Assessment Tool for Young People Living with Chronic Health Conditions
    Emily von Scheven, Mitchell Braun, Bhupinder Nahal, Emily R. Perito, Paul Brakeman, William Daniel Soulsby, Laura Quill, Addison Cuneo, Linda S. Franck
    Children.2024; 11(11): 1396.     CrossRef
  • Investigating various interventions to improve the quality of life of children and adolescents suffering from chronic diseases – a systematic review
    FatemehSadat SeyedNematollah Roshan, Narges Rahmani, Leila Nikrouz
    International Journal of Adolescent Medicine and H.2024; 36(6): 525.     CrossRef
  • Hope and pediatric health
    Brittany D. Lancaster, Jason Van Allen
    Current Opinion in Psychology.2023; 49: 101500.     CrossRef
  • Leisure Learning's Contribution: Effects on Torah and Other Enrichment Learners
    Hana Gendel Guterman, Ora Elkan, Talma Kushnir, Nitza Davidovitch
    World Leisure Journal.2023; 65(3): 343.     CrossRef
  • The mediation role of self-esteem and hope on the relationship of quality of life and unmet needs of elderly with psychiatric disorders
    Mariye Jenabi Ghods, Ladan Fattah Moghaddam, Mohammad Javad Hosseinabadi-Farahani, Mohammad Pourebrahimi
    Journal of Education and Health Promotion.2023;[Epub]     CrossRef
  • Congratulations on Child Health Nursing Research becoming a PubMed Central journal and reflections on its significance
    Sun Huh
    Child Health Nursing Research.2022; 28(1): 1.     CrossRef
  • Hope and Quality of Life among Adolescent with Thalassemia: A Cross-sectional Study in Indonesia
    Ai Mardhiyah, Henny Suzana Mediani, Santhna Letcmi Panduragan, Iyus Yosep, Linlin Lindayani
    Open Access Macedonian Journal of Medical Sciences.2022; 10(G): 667.     CrossRef
  • Development and Psychometric Testing of a Children’s Version of the Herth Hope Index
    Kaye Herth, Sara M. Sarasua
    Journal of Nursing Measurement.2022; 30(4): 627.     CrossRef
  • Waves of family hope: narratives of families in the context of pediatric chronic illness
    Ana Carolina Andrade Biaggi Leite, Cristina García-Vivar, Francine DeMontigny, Lucila Castanheira Nascimento
    Revista Latino-Americana de Enfermagem.2021;[Epub]     CrossRef
  • 6,677 View
  • 306 Download
  • 19 Crossref

Original article

Effects of Perceived Daily Stress and Sense of Humor on Quality of Life among School-Age Children
Hyun-Yi Chai, Mi-Young Choi
Child Health Nurs Res 2018;24(1):18-26.   Published online January 31, 2018
DOI: https://doi.org/10.4094/chnr.2018.24.1.18
Purpose
Quality of life is important to everyone including school-age children. Therefore this study was done to identify the effects perceived daily stress and sense of humor on quality of life for these children.
Methods
The study was a cross-sectional, descriptive study design with 371 participants from 5th and 6th grade children in 5 elementary schools. Data were analyzed using descriptive statistics, t-test, ANOVA, Pearson correlation coefficients, and multiple regression analysis with SPSS/WIN 24.0 program.
Results
Factors influencing quality of life in school-age children were daily stress, sense of humor, satisfaction with daily life, academic performance and home atmosphere. These variables explained 63.0% of quality of life in school-age children.
Conclusion
Results showed that lower daily stress and higher sense of humor are associated with higher quality of life. Therefore, to improve quality of life in school-age children, healthcare providers should develop intervention programs considering these factors.

Citations

Citations to this article as recorded by  
  • Çocuklarda Mizah Ölçeğinin (4-12 yaş) Geliştirilmesi ve Çocukların Mizah Eğilimlerinin İncelenmesi
    Arzu Özyürek, Hatice Keser, Nagihan Yıldırım
    Uluslararası Erken Çocukluk Eğitimi Çalışmaları De.2024; 9(2): 65.     CrossRef
  • Factors affecting the mental health status of children from multicultural families in South Korea: a cross-sectional descriptive analysis of data from the multicultural adolescents panel study
    Sunyeob Choi
    Child Health Nursing Research.2023; 29(1): 60.     CrossRef
  • Research Trends in Daily Stress Among Children and Adolescents: Articles Published from 2010 to 2020 in Korea
    Sungmin Park, JungHa Lim
    Korean Journal of Child Studies.2021; 42(1): 89.     CrossRef
  • A Study on Child Friendliness in the G Local Community and Life Satisfaction of Children and Adolescents
    Ara Choi, Hye sun Kim, Sook Lee
    The Korean Journal of Community Living Science.2019; 30(3): 377.     CrossRef
  • 8,392 View
  • 347 Download
  • 4 Crossref
Original Articles
Factors Influencing the Quality of Life in Mothers of Children with Precocious Puberty
Suyoung Lee, Gaeun Kim
Child Health Nurs Res 2017;23(3):312-318.   Published online July 31, 2017
DOI: https://doi.org/10.4094/chnr.2017.23.3.312
Purpose
In this study factors affecting quality of life in mothers who have children with precocious puberty were identified.
Methods
The participants were 102 mothers of children with precocious puberty. From September 12 to September 30, 2016, data were collected using a structured questionnaire and analyzed using SPSS/WIN 22.0.
Results
Regression analysis showed that the model’s explanatory power was 45%(F=28.71, p<.001). Role stress (t=-4.83, p<.001), objective burden (t=-2.71, p<.001), and average monthly income (t=4.12, p<.001) were factors affecting quality of life among these mothers. The most influential factor was role stress (β=-.41), which showed a negative correlation.
Conclusion
Role stress and objective burden were major factors that decreased the quality of life in these. The findings indicate that effective strategy programs for reducing role stress and objective burden are necessary to improve the quality of life in mothers of children with precocious puberty.

Citations

Citations to this article as recorded by  
  • Exploring the Relationship between Parental Stress and Child Behavioral Problems in Precocious Puberty: The Role of Parenting and Coping Strategies
    Young Il Cho, Ahreum Kwon, Hyo Jin Kim, Eun Seo Park, Junghwan Suh, Dong Hee Kim
    Yonsei Medical Journal.2025;[Epub]     CrossRef
  • The mediating effects of parenting style on the relationship between parental stress and behavioral problems in girls with precocious puberty in Korea: a cross-sectional study
    Ahreum Kwon, Young Il Cho, Hyo Jin Kim, Junghwan Suh, Dong Hee Kim
    BMC Pediatrics.2023;[Epub]     CrossRef
  • Psychosocial adaptation to precocious puberty: A nursing support program
    Mukaddes Turan Miral, Nevin Hotun Sahin
    Journal of Child and Adolescent Psychiatric Nursin.2022; 35(3): 285.     CrossRef
  • Perceptions and Treatment of Precocious Puberty: A Questionnaire Survey among Caregivers in South Korea
    Soo Bo Shim, Ji Hyun Song, Hye Lim Lee, Chou-Chin Lan
    Evidence-Based Complementary and Alternative Medic.2022; 2022: 1.     CrossRef
  • Puberte Prekoksun Psikososyal Etkileri
    Nevin HOTUN ŞAHİN, Mukaddes TURAN MİRAL
    Turkish Journal of Pediatric Disease.2021; : 1.     CrossRef
  • Mothers' Experiences of Caring for Children with Precocious Puberty: A Q-Methodological Approach
    Hye Jin Lee, Mi-Ae You
    Journal of Korean Academy of Nursing.2020; 50(2): 255.     CrossRef
  • Effect of a Social Support Program for Mothers of Children with Precocious Puberty: A Preliminary Quasi-Experimental Study
    Jaeyoung Lee, Min Jung Kwak, Hyeon Ok Ju
    Journal of Pediatric Nursing.2019; 46: e2.     CrossRef
  • 9,658 View
  • 235 Download
  • 7 Crossref
A Structural Equation Model on Quality of Life of Mothers of Children with Attention Deficit Hyperactivity Disorder
Chan Gyeong Park, Mi Yang Jeon
Child Health Nurs Res 2017;23(3):279-291.   Published online July 31, 2017
DOI: https://doi.org/10.4094/chnr.2017.23.3.279
Purpose
The aim of this study was to explore how characteristics of ADHD children affect social support for mothers, parenting stress, parenting sense of competence, coping, and quality of life. The conceptual model was based on the Lazarus and Folkman’s stress-evaluation- coping theory.
Methods
Data were collected 208 mothers of children with ADHD. Data were analysed using SPSS 18.0 and AMOS 18.0 programs.
Results
The proposed model was good fit for the data based on the model fit indices. Parenting stress, parenting sense of competence and coping directly affected quality of life but characteristics of the children and social support had only an indirect effect. The explanatory power of these variables was 52.1%.
Conclusion
The results of this study indicate that nursing strategies to increase social support for mothers with ADHD children, lowers parenting stress, improves parenting sense of competence, and guides the parents to choose appropriate coping. In particular, as social support has the strongest influence on the quality of life, it is necessary to develop nursing intervention programs that utilize social support for parents with ADHD children.

Citations

Citations to this article as recorded by  
  • Structural Equation Modeling for Quality of Life of Mothers of Children with Developmental Disabilities: Focusing on the Self-Help Model
    Mi Ran Yang, Mi Yu
    Journal of Korean Academy of Nursing.2022; 52(3): 308.     CrossRef
  • 12,748 View
  • 240 Download
  • 1 Crossref
The Characteristics of Intellectual and Psychological in the Children with Moyamoya Disease
Insun Yeom, Dong-Seok Kim, Eun-Young Lee, Hea-Soon Kim
Child Health Nurs Res 2015;21(2):123-130.   Published online April 30, 2015
DOI: https://doi.org/10.4094/chnr.2015.21.2.123
Purpose
The purpose of this study was to understand the intellectual and psychological features of children with Moyamoya disease who were patients in the Department of Pediatric Neurosurgery of Severance Hospital.
Methods
From December 2010 through December 2012, 63 patients with diagnoses of Moyamoya disease and 59 children in a normal group were enrolled. This study was conducted using the Korean-Wechsler Intelligence Scale for Children, Rey-Kim Memory Test for children, Korean Child Behavior Checklist and Pediatric Quality of Life InventoryTM4.0.
Results
The results showed that the intellectual and psychological profiles of children with Moyamoya disease were lower than the average of the normal control group. The tested patients showed significantly lower scores for Performance Intelligence Quotient cognition level. Also, in terms of quality of life, children with Moyamoya disease had lower levels of physical and school functionality. The results were in line with those of previous studies involving psychological tests of children with chronic diseases.
Conclusion
Considering the intellectual and psychological characteristics of children with Moyamoya disease, integrated psychological intervention plans including elements such as supportive therapy for patients and programs for parental education are required.

Citations

Citations to this article as recorded by  
  • Structural equation model based on salutogenesis theory for evaluating factors affecting health-related quality of life in adolescents with moyamoya disease
    Won-oak Oh, Insun Yeom, Sung-Hyun Lim
    Scientific Reports.2022;[Epub]     CrossRef
  • Features and diversity of symptoms of moyamoya disease in adolescents: A cluster analysis
    Won‐Oak Oh, Kyu Won Shim, Insun Yeom, Il Tae Park, YooJin Heo
    Journal of Advanced Nursing.2021; 77(5): 2319.     CrossRef
  • Factors Influencing Health Behavior Compliance in Adult Moyamoya Patients
    Bo Eun Kim, Ju-Eun Song
    Journal of Korean Academy of Nursing.2021; 51(1): 80.     CrossRef
  • The Moyamoya Health Behavior Scale for Adolescent Patients: Measurement Tool Development and Psychometric Evaluation
    Won-oak Oh, Insun Yeom, Sung-Hyun Lim, Dong-Seok Kim, Kyu-won Shim
    International Journal of Environmental Research an.2021; 18(8): 4064.     CrossRef
  • Stress and mood of adults with moyamoya disease: A cross‐sectional study
    Yong Sook Yang, Gi Wook Ryu, Insun Yeom, Kyu Won Shim, Mona Choi
    Nursing & Health Sciences.2020; 22(3): 795.     CrossRef
  • 11,342 View
  • 200 Download
  • 5 Crossref
Translation and Validation of a Health-Related Quality of Life Instrument for 18-60-Month-Old Children in Korea
Kyung‐Sook Bang, Sung‐Hee Park, Hyun‐Ju Kang
Child Health Nurs Res 2015;21(2):115-122.   Published online April 30, 2015
DOI: https://doi.org/10.4094/chnr.2015.21.2.115
Purpose
The purpose of this study was to validate the Korean version of the TNO-AZL Preschool Children Quality of Life (TAPQOL) questionnaire for children aged 18-60 months.
Methods
The participants were 223 mothers of healthy children from nurseries and kindergartens, and 54 mothers of hospitalized children from a university children’s hospital in Korea. Data were collected in 2011. Principal component factor analysis and known-groups method were used to confirm construct validity, and internal consistency was used to determine reliability.
Results
According to the factor analysis, 11 factors with an eigenvalue over 1 were extracted, and these factors explained 73.5% of the variance. All dimensions except two had Cronbach’s alpha coefficients greater than .7. The mean TAPQOL scores of the hospitalized group were significantly lower than those of the healthy group (p = .001) for all four functions (physical, emotional, social, and cognitive).
Conclusion
The TAPQOL showed acceptable validity and reliability, and can be used to measure children’s health-related quality of life in Korea, and can be considered for use in other Asian countries.

Citations

Citations to this article as recorded by  
  • Portuguese Validation of the TAPQoL: A Health-Related Quality of Life Instrument for Children Aged 0–6 Years
    Ana Ferraz, Martim Santos, M. Graça Pereira
    European Journal of Investigation in Health, Psych.2024; 14(2): 399.     CrossRef
  • 8,647 View
  • 101 Download
  • 1 Crossref
PURPOSE
This study was conducted to survey knowledge, compliance, and quality of life of mothers who have children with atopic dermatitis, and to determine whether above mentioned factors influence each other.
METHODS
The participants in this study were 165 mothers of children with atopic dermatitis recruited from one out-patient clinic in a hospital in Seoul. The data were collected between March 8, and April 16, 2010 using a structured questionnaire.
RESULTS
The mean score for participants' knowledge was 4.17/5, for compliance, 4.27/5 and for quality of life, 3.42/5. Among the five domains of quality of life, emotional status had the lowest score (3.20/5). Knowledge was significantly correlated with compliance (r=.215, p<.005). However, quality of life was not correlated with knowledge (r=-.069) and compliance (r=-.077).
CONCLUSION
Accurate knowledge affects compliance of mothers of children with atopic dermatitis. Therefore, to increase the level of compliance, it is necessary to enhance the knowledge of the mothers. Results also suggest that interventions are needed to improve poor quality of life, particularly the emotional condition of mothers of children with atopic dermatitis.

Citations

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  • A Cross-Sectional Study on Prevalence and Socio-Demographic Correlates of Hypertension in Peri-urban Community of Kashmir Valle
    Uroosa Farooq Allaqband, Anjum B Fazili, Rohul Jabeen Shah, Javeed Ahmad Parray
    Healthline.2021; 12(1): 55.     CrossRef
  • Evaluation of nutritional status and adequacy of energy and nutrient intakes among atopic dermatitis children under 12 years of age: based on Korea National Health and Nutrition Examination Survey data (2013–2015)
    Hye Won Kim, Ji-Myung Kim
    Journal of Nutrition and Health.2020; 53(2): 141.     CrossRef
  • Effects of the Mother-Medical Staff Partnership on Mothers’ Condition Management Ability for Children with Chronic Allergic Diseases
    Hae Kyoung Son, Hyo Bin Song, Dong Hee Kim
    Child Health Nursing Research.2018; 24(1): 101.     CrossRef
  • A Comparative Study of Family Management Style According to Severity of Childhood Atopic Dermatitis
    Hae Kyoung Son, Hee-Soon Kim
    Child Health Nursing Research.2016; 22(4): 309.     CrossRef
  • Current Status in Management of Children with Atopic Dermatitis and Knowledge and Practice of Preschool Teachers.
    In Sook Cho, Se Ang Ryu
    Child Health Nursing Research.2013; 19(1): 49.     CrossRef
  • 4,232 View
  • 51 Download
  • 5 Crossref
PURPOSE
The purpose of this study was to describe quality of life in school age children and the relationship between quality of life and parenting attitude as perceived by children and parent-child communication pattern.
METHODS
Data were collected between May 26 and June 3, 2009 using self-report questionnaires from 148 pairs of children and their parents. The children were enrolled in 4th to 6th grades. The questionnaires included the Parental Bonding Instrument (PBI), Parent-Child Communication (PCC) Scale, and Pediatric Quality of Life Inventory (PedsQL). The data were analyzed using the SPSS WIN 17.0 program.
RESULTS
The Quality of Life (QOL) score for the children was significantly higher among children reporting higher parental bonding attitude (mother r=.38, father r=.34) and parent-child communication (mother r=.43, father r=.36).
Results
of multiple regression showed that factors significantly associated with QOL were academic achievement, caregiver available after school, parent-child communication, school satisfaction, relationship with peers, and birth order among siblings.
CONCLUSION
Positive relationships and good communication with parents and satisfaction with school life were important factors associated with quality of life in school age children.

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    Meijie Chu, Zhiwei Fang, Chun-Yang Lee, Yi-Han Hu, Xian Li, Shih-Han Chen, Tianmu Chen, Xuehui Chen, Yi-Chen Chiang
    Child Indicators Research.2023; 16(4): 1527.     CrossRef
  • The development and effects of the logotherapy-based ego-identity improvement program with the application of group art activities in late school-aged children
    Young-Sook Lim
    International Journal of ADVANCED AND APPLIED SCIE.2022; 9(12): 89.     CrossRef
  • Positive parenting and its mediating role in the relationship between parental resilience and quality of life in children with developmental disabilities in Java Island, Indonesia
    Yapina Widyawati, R.H.J Scholte, Tijs Kleemans, Roy Otten
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    Yeunhee Kwak, Yoonjung Kim, Eun Seok Choi, Ho Joon Im
    European Journal of Oncology Nursing.2021; 54: 102019.     CrossRef
  • Effects of Perceived Daily Stress and Sense of Humor on Quality of Life among School-Age Children
    Hyun-Yi Chai, Mi-Young Choi
    Child Health Nursing Research.2018; 24(1): 18.     CrossRef
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    Nayeon Shin, Youha Jang, Younhee Kang
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    Eun Hee Lim, Hyeon Ok Ju
    Child Health Nursing Research.2015; 21(1): 37.     CrossRef
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    Jung Won Lee, Ji Eun Han, Ho Ran Park
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PURPOSE
The purpose of this research was to develop an interpersonal caring program "Muldan Dongsan" for vulnerable adolescents in mental health clinics and to identify the effect of this program.
METHODS
The interpersonal caring program was composed of group interpersonal caring (one time per week for two weeks, for a total of 8 hr) and individual interpersonal caring (1-2 times per day for 2 weeks). For this research, a non-synchronized quasi-experimental model including nonequivalent experimental and control groups was used. The experimental group was made up of 17 students and the control group, of 22 students. The data were collected from May 11 to July 25, 2009 and the collected data were analyzed using the SPSS/WIN 17.0 program.
RESULTS
The interpersonal caring program "Muldan Dongsan" was effective for mental health, including self-esteem, hope, and quality of life for vulnerable adolescents.
CONCLUSION
The positive findings on the effectiveness of the interpersonal caring program "Muldan Dongsan" and the participants' high satisfaction with this program indicate that it can be utilized actively as a specific nursing intervention program for adolescents at school and in the community.

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  • Analysis of Korean Nursing Studies Applied in Interpersonal Caring Theory
    Heeyoung Kim
    Journal of Korean Academy of Fundamentals of Nursi.2020; 27(2): 116.     CrossRef
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  • 35 Download
  • 1 Crossref
PURPOSE
This study was designed to identify how parenting stress and empowerment affect the quality of life in caregivers of children with disabilities. METHODS: Caregivers assuming parenting responsibilities for children with disabilities under 18 yr of age were recruited at 8 local welfare centers, homes for children with disabilities, and parent associations in U city. They were asked to complete a questionnaire in a face to face interview or by self-report, and 265 data units were analyzed with stepwise multiple regression. RESULTS: Parenting stress, empowerment and monthly income were statistically significant explaining 39% of the variance. Among the subconstructs of parenting stress and empowerment, parental distress (beta=-.42, t=-6.45) and competence (beta=.30, t=3.59) significantly influenced quality of life. Among the general characteristics, monthly income (beta=.10, t=2.01) was found to be significantly related to quality of life. CONCLUSION: Nurses who work with children with disabilities and their caregivers need to focus on parental distress and competence to improve the quality of life of caregivers and to stimulate development in children with disabilities.

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    Boyoung Kim
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    Soyon Jung
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    Kyung Seu Cho, Eun Joo Hong
    Stress and Health.2013; 29(3): 229.     CrossRef
  • 4,578 View
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Home Nursing and Quality of Life in Parents of Children with Atopic Dermatitis.
In Soo Kwon, Yeong Mi Seo
J Korean Acad Child Health Nurs 2009;15(4):401-408.
DOI: https://doi.org/10.4094/jkachn.2009.15.4.401
PURPOSE
This study was done to assess the home nursing and quality of life of parents caring for preschool children with atopic dermatitis and to identify the factors which influence quality of life. METHODS: Participants in the study were 149 parents of preschool children with atopic dermatitis attending a kindergarten and a nursery school in S city. Parent completed a set of questionnaires (assessing demographic factors, home nursing, quality of life). Descriptive analysis, t-test, ANOVA and multiple regression were used to analyze the data. RESULTS: The mean score for home nursing was 3.06+/-0.38 and for quality of life, 4.18+/-0.74. The lowest scored question in the 13 question on quality of life was that of frustration related to itching sensation. Significant factors that affect quality of life were severity and home care. These variables explained 21% of variance in quality of life (F=21.17, p<.001). CONCLUSION: The results indicate that severity of childhood atopic dermatitis and home nursing impact on the quality of life of parents. Using the above findings, health professionals who work with children with atopic dermatitis and their parents need to develop specific nursing interventions that will promote health of children with atopic dermatitis and quality of life in their parents.

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    Hae Ji Jang, Seonyeong Hwang, Youngmee Ahn, Dae Hyun Lim, Min Sohn, Jeong Hee Kim
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    In Sook Cho, Se Ang Ryu
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    Ji Won Oak, Hea Shoon Lee
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    Hee Ja Kim, Kyung-Sook Bang, Jae Soon Yoo, Hyun Sook Kim, Yang Ju Tak, Bo Yun Huh
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  • Knowledge, Compliance and Quality of Life of Mothers of Children with Atopic Dermatitis
    Min-Ju Kim, Mi-Hye Choi
    Journal of Korean Academy of Child Health Nursing.2011; 17(4): 272.     CrossRef
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The Effect of Logotherapy on the Suffering, Finding Meaning, and Spiritual Well-being of Adolescents with Terminal Cancer.
Kyung Ah Kang, Jae Im Im, Hee Su Kim, Shin Jeong Kim, Mi Kyung Song, Songyong Sim
J Korean Acad Child Health Nurs 2009;15(2):136-144.
DOI: https://doi.org/10.4094/jkachn.2009.15.2.136
PURPOSE
To evaluate the effects of a logotherapy education program.
METHODS
A nonequivalent control group, non-synchronized design was conducted with a convenience sample of 29 children with cancer. The experimental group (n=17) participated in the logotherapy education program which consisted of 5 daily sessions for one week. The control group (n=12) received the usual nursing care. The effects were measured using suffering, adolescent meaning in life (AMIL), and spiritual well-being (SWBS) scales.
RESULTS
There were significant differences in suffering (W=153.00, p< .05) and meaning in life (W=78.00, p< .05) between the experimental and control groups. However, there was no significant difference in spiritual well-being (W=136.50, p> .05).
CONCLUSIONS
Logotherapy was effective in reducing suffering and improving the meaning in life. Logotherapy can be utilized for adolescents with terminal cancer to prevent existential distress and improve their quality of life.

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PURPOSE
In this study, a comparison was done of the extent of health-related quality of life (HRQoL) for preterm and fullterm children during early childhood, and factors affecting HRQoL in the early childhood of premature children were analyzed.
METHODS
Eighty mothers of children born prematurely and 83 mothers of children born at fullterm listed on two Internet cafes were sampled for this study. The major instrument used for the study was the TNO-AZL Preschool Quality Of Life (TAPQOL) questionnaire.
RESULTS
Total score for HRQoL in the premature group was 80.5 (+/-9.9) and for the full term group, 85.0 (+/-8.3), on a 100-point scale. A comparison of the premature group and full term group showed that the domains which scored relatively lower with respect to HRQoL included the stomach, motor function, anxiety, liveliness and communication. Among the factors that have an impact on HRQoL were 'length of stay in neonatal intensive care unit (> or =7 days)' and 'birth weight (<1,000 gm)'. The explanation power of the model was 17%, which was statistically significant.
CONCLUSION
These findings indicate that a differentiated premature infant follow-up program for children who are hospitalized over 7 days in NICU or weighed under 1,000 g at birth is urgently needed.

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  • Addressing the Needs of Mothers with Infants in the Neonatal Intensive Care Unit: A Qualitative Secondary Analysis
    Ah Rim Kim
    Asian Nursing Research.2020; 14(5): 327.     CrossRef
  • The Reliability of the Pediatric Functional Muscle Testing in Children with Developmental Delay
    Hye-Jung Seo, Joong-Hwi Kim
    The Journal of Korean Physical Therapy.2015; 27(4): 183.     CrossRef
  • 5,609 View
  • 99 Download
  • 2 Crossref
PURPOSE
The purpose of this study was to examine relationship of preschool child and mother interaction, child's health status, health-related quality of life and social development. Also, it was intended to provide a basis for development of mother-child interaction programs.
METHODS
The present study was a descriptive research. Participants in this study were a convenience sample of 230 preschool children and their mothers. For the final analysis 209 questionnaires were used after eliminating questionnaires with incomplete responses. Data were analyzed using the SPSS 18.0 program.
RESULTS
The mean score for interaction between preschool child and mother was 3.96+/-0.55 out of 5 points, for child health status, 3.75+/-0.62 out of 5 points, for child's health-related quality of life, 83.89+/-10.20 out of 100 points and for child's social development, 19.66+/-3.57 out of 24 points. Positive correlations were found between interaction of preschool child and mother, child's health status, health-related quality of life, and social development.
CONCLUSION
The results demonstrate the importance of the quality of the relationship between mother, the child's primary caregiver, and her child for the healthy growth and development of preschool children. It is suggested that intervention programs for preschool child-mother interaction should be developed using evidence based data.

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    Jungsun Kim, Sangeun Oh
    Child Health Nursing Research.2021; 27(4): 385.     CrossRef
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    Yong-Sook Eo, Ji-Soo Kim
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    Hye Young Song, Won Jin Ju, Yanghee Pang
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    Sunghee Park
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Quality of Life in Children and Adolescents with Cancer.
Jung Won Lee, Ji Eun Han, Ho Ran Park
Child Health Nurs Res 2013;19(1):21-28.
DOI: https://doi.org/10.4094/chnr.2013.19.1.21
PURPOSE
This study was done to provide basic data for developing nursing interventions to enhance quality of life of pediatric patients with cancer (children and adolescents) by examining the quality of life and related factors.
METHODS
Participants were 134; 67 pediatric patients and 67 parents. The PedsQL(TM) 3.0 Cancer Module was employed to measure quality of life in the participants. The related factors included general and clinical characteristics of the participants.
RESULTS
Mean score for quality of life in the patients was 75.07, and mean score for patient quality of life as perceived by their parents was 64.40. Among the quality of life subscales, treatment anxiety had the highest score whereas nausea had the lowest score. Mean score in adolescent patients (13-18 years of age) was 71.62, lower than the 78.04 for child patients (8-12 years of age). Regarding general and clinical characteristics of the participants, there were no significant differences in the scores.
CONCLUSION
The results indicate that there is difference in perception of quality of life between patients and their parents, and between children and adolescents and these differences should be taken into account when planning and providing nursing care.

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  • The Effects of Illness Cognition on Resilience and Quality of Life in Korean Adolescents and Young Adults with Leukemia
    Ju-Young Lee, Dae-Chul Jeong, Nack-Gyun Chung, Sunhee Lee
    Journal of Adolescent and Young Adult Oncology.2019; 8(5): 610.     CrossRef
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    강은정, 한겨레
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    Eun Hee Lim, Hyeon Ok Ju
    Child Health Nursing Research.2015; 21(1): 37.     CrossRef
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    Dong Hee Kim, Nack-Gyun Chung, Sunhee Lee
    Journal of Pediatric Oncology Nursing.2015; 32(5): 295.     CrossRef
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Dimensions and Attributes of Quality of Life in Korean School-age Children.
Kyung Ja Han, Young Hee Yi, In Ok Sim, Yun Jung Choi
Korean J Child Health Nurs 2005;11(2):167-178.
PURPOSE
The purpose of this study was to describe quality of life (QOL) in Korean school-age children by identifying dimensions and attributes of QOL from the child's point of view.
METHOD
In-depth interviews with focus questions were used for the study. Twelve children, aged 10 to 13 years, were recruited from Seoul and rural areas. The interviews were audio-taped and transcribed before content analysis. The data were analyzed for themes and attributes. The researchers read the data together and discussed their conclusions until a consensus was reached.
RESULTS
Eight dimensions, 57 subdimensions and 101atttributes were identified for QOL in school-age children. The eight dimensions of QOL were physical, social, emotional, learning, leisure, family, self-value, and material aspects.
CONCLUSION
The study results can be utilized in developing reliable instruments to measure quality of life specific to school-age children. It is proposed that a consistent and unified policy should be established by school, family, and community for the purpose of improving the QOL of school-age children.
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Children with Epilepsy: Quality of Life and Management.
Yeong Hee Shin
Korean J Child Health Nurs 2004;10(2):225-232.
The purpose of this article is to describe the overview of current medical treatments of childhood epilepsy in Korea and to review several recent nursing researches related to quality of life problems, especially psychological functioning in children with epilepsy and the stress of the family. The prognosis of childhood epilepsy has been improved considerably and about 80% of patients can now be expected to achieve complete seizure control by the antiepileptic drug treatment. Even for the intractable epilepsy, with the combination of ketogenic diet program and antiepileptic drug therapy or surgical treatment, the prognosis became very much better than before. The majority of research has reported that children with epilepsy were experiencing quality of life problems. They are at risk for impaired functioning, compared to either general population controls or to other chronic illness groups such as asthma and diabetes. The ultimate goal of providing care to children with epilepsy is to control seizures while facilitating an optimal quality of life for the child as well as the family. Recommendations are included for future research and intervention programs for children, parents and our society.
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A Study on the Correlation between Stress, Mother-adolescent Communication and Quality of Life in the Adolescents.
Mi Ryeong Song, Hae Young Ahn, Eun Kyung Kim
Korean J Child Health Nurs 2002;8(2):141-151.
The purpose of this study was to find out the correlations between mother-adolescent communication and quality of life in the adolescents. The study subjects consisted of 171 adolescents who were going to middle school and high school. The data included general characteristics, health related characteristics, stress, mother-adolescent communication and quality of life. The data were analyzed by frequency, mean, percentage, t-test, ANOVA and Pearson's correlation using the SPSS statistical program. The result were as follows: 1. The mean score for the stress of adolescent was 2.48(maximum score: 5) and there were significant difference according to demographic variables that is sex, grade, father's being and health related variables that is health status, frequently ill, illness severity and illness of family. 2. The mean score for the mother-adolescent communication was 3.27(maximum score : 5) and there were significant difference according to demographic variables that is father's and mother's being. There were no significant difference according to any health related variables. 3. The mean score for the quality of life of adolescent was 3.97(maximum score : 7) and there were no significant difference according to demographic and health related variables. 4. There was a negative correlation between the stress and the quality of life. There was a positive correlation between the quality of life and the mother-adolescent communication. There was a no correlation between the mother-adolescent communication and the quality of life. Consequently, the implication for nursing of this study is that there is a need to develop relief strategy of stress for the female adolescents. And there is a need to develop a promoting program of quality of life for the adolescents considering the stress and the mother-adolescent communication.
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A Prediction Model for the Quality of Life in Mothers of Children with Nephrotic Syndrom.
Seung Nam Paik
Korean J Child Health Nurs 2001;7(3):280-297.
The purpose of the study was to develop and test the model for the quality of life in mothers of children with nephrotic syndrome. A hypothetical model was constructed on the basis of previous studies and a review of literature. The conceptual framework was built around ten constructs. Exogenous variables included in this model were mother's health, father's health, marital intimacy, mother's attitude on children, economic state, side effect of steroid, severity of illness and social support. Endogenous variables were mother's burden and quality of life. Empirical data for testing the hypothetical model were collected by using a self-report questionnaire from 152 mothers of children with nephrotic syndrom at the outpatient clinics and in the hospital. The data was collected from May, 1999 to August, 1999. Reliability of the seven instruments was tested with Cronbach's alpha which ranged from 0.71 - 0.92. For the data analysis, SPSS 8.0 WIN program and LISREL 8.20 WIN program were used for descriptive statistics and covariance structural analysis. The results of covariance structural analysis were as follow : 1.The hypothetical model showed a good fit with the empirical data.[x2 = .56, df = 3, p = .90(p > .05 ), GFI = .99, AGFI = .99, RMSR = .005.] 2. For the parsimony of model, a modified model was constructed by deleting 1 variable and excluding 2 paths according to the criteria of statistical significance and meaning. 3.The modified model also showed a good fit with the data[x2 = 2.83, df = 7, p = .90( p > .05 ), GFI = 1.00, AGFI = .97, RMSR = .011]. The result of the testing of the hypothesis were as follows : 1.Mother's health( gamma 21 = .26, t = 4.16), father's health( gamma 22 = .19, t = 2.92), marital intimacy( gamma 23 = .26, t = 4.13) and social support( gamma 28 = .12, t = 2.03) had a significant direct effect on the quality of life. 2. Mother's burden( beta 21 = -.20, t = -3.10) had a significant negative direct effect on the quality of life. 3. Mother's attitude on children( gamma 14 = -.34, t = .-4.57), mother's health( gamma 11 = -.22, t = -2.96) and side effect of steroid ( gamma 16 = -.23, t = .-2.69) had a significant direct negative effect on the burden. The result of this study showed that mother's health, marital intimacy, mother's burden, father's health, and social support had a significant direct effect on the quality of life. Mother's attitude on children, mother's health, and side effect of steroid had a significant direct effect on mother's burden. These six variables, mother's health, marital intimacy, father's health, social support, mother's attitude on children and side effect of steroid were identified as relatively important variables. The results of this study suggest, it needed to determine the nursing intervention will alleviate mother's burden and promote a greater quality of life in mothers of children with nephrotic syndrom.
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The Study on the Quality of Life for the Mothers of Hospitalized Chronic Pediatric Patients.
Myung Ae Chei, Hyun Sook Lee, Dae Hee Kim, Myung Hee Park, So Young Yoon, Yeon Hee Cho, Kyung Sook Bang, Yeon Hwan Park
Korean J Child Health Nurs 2000;6(2):249-261.
The purpose of this study were to identify the quality of life for the mothers of hospitalized chronic pediatric patients, and to explore the factors affecting the QOL of those mothers. The subjects were 201 mothers whose children had hospitalized at one University hospital with chronic diseases. Data were collected from the December, 1997 to December, 1998. We used a revised QOL instrument consisting of 34 items, 5 point likert scale based on the Noh's QOL instrument. The revised QOL consists of six subscales, those are physical status and function, self esteem, emotional status, economic status, relationship with family members, and relationship with neighborhood. Data were analyzed by t-test, ANOVA, Pearson's correlation using SPSS-PC. The results were as follows: 1. The mean score of quality of life for the mothers of chronic pediatric patients was 100.31, and item mean was 2.95. In subscale analysis, item mean of economic status was the lowest, and that of relationship with family members was the highest. 2.Correlations between characteristics of chronic pediatric patients, their mothers and QOL of mothers were as follows; 1) Total QOL of mothers had a significant positive relationship with progressing time relapse after diagnosing and age of mothers. There was a significant negative relationship between the total QOL of mothers and number of hospitalization of their children. 2) QOL on self esteem and economic status had a significant relationship with age of pediatric patients, the time relapse after diagnosis, and age of mothers. Total number of family members and QOL on economic status showed a significant positive relationship. QOL on emotional status, economic status, and relationship with family members of mothers showed negative correlations with the number of hospitalization of their children. 3. Followings were the result of difference in QOL among different demographic characteristics of the subjects. 1) QOL on economic status of mothers was significantly higher when fathers of pediatric patients had jobs. 2)Total QOL score, QOL on emotional status, and QOL on relationship with neighborhood were significantly higher when mothers of pediatric patients had spouses. 3)QOL on self esteem of mothers was significantly higher when mothers had religion. 4. Followings were the result of difference in QOL among different diagnosis of the children. 1)Total QOL score of mothers whose children had congenital heart disease was higher than that of mothers whose children had leukemia and cancer. 2)QOL on emotional status, economic status, and relationship with family members of mothers whose children had congenital heart disease were higher than those of mothers whose children had leukemia, cancer, and epilepsy.
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A Study on Burden and Quality of Life in Mothers of Child with Nephrotic Syndrome.
Mi Hae Sung, Seung Nam Paik
Korean J Child Health Nurs 1999;5(2):125-135.
The purpose of this study was to identity the level of burden and quality of life of the subjects. The subjects of this study were 68 mothers of nephrotic syndrome patients who children hospitalized in 2 Pediatric wards of University Hospital in Seoul. The data were collected through a questionnaires and the period of the data collection was from August 1st to September 30th ,1998. The instruments for this study were Burden Measurement Instrument developed by Montgomery et. al (1985) and Quality of life scale designed by Ro, Yoo JA (1988). The statistical analysis was used by SPSS, t-test, ANOVA and Pearson correlation coefficient. The results of were as follows : 1. The level of burden showed a mean score 54.47 and the level quality of life, a mean score 140.20. 2. The level of burden differed according to s religion, pt's purpose of admission and perceived patient's condition by mothers. 3. The level of quality of life differed according to perceived pt's condition by mothers. 4. There was a negative correlation between burden and quality of life(r=-3.97, p<.001).
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Factors Influencing Family Quality of Life among Mothers of Children with ADHD.
Won Oak Oh
J Korean Acad Child Health Nurs 2008;14(4):396-404.
PURPOSE
This study was conducted to identify the level of quality of family life, parental locus of control, and parental sense of competence, and to elucidate factors that influence family quality of life in the mothers of children with Attention Deficit/Hyperactive Disorder (ADHD).
METHOD
A convenient sample of mothers from 6 child psychiatric clinics was used in this cross-sectional survey design. Questionnaires used for data collection included the following scales: Family Quality of Life, Parental Locus of Control-Short Form Revised, Parental Sense of Competence.
RESULTS
The level of family quality of life was mid-range. A positive relationship was found between Family Quality of Life and the research variables. The significant predictors of family quality of life were parental locus of control, parental sense of competence, and duration of medication and these variables accounted for 21.8% of the variance in family quality of life.
CONCLUSIONS
These results indicate that family quality of life is an important factor which health care provider should assess and evaluate for children with ADHD and their families. The results of this study suggest that family quality of life is an important link with parental sense of competence and parental locus of control.
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Development of a CD Program Applied Logotherapy to Promote Quality of Life in Adolescents with Terminal Cancer.
Kyung Ah Kang, Shin Jeong Kim, Chuhl Joo Lyu, Young Gweon You, Mi Kyung Song
J Korean Acad Child Health Nurs 2007;13(4):495-505.
PURPOSE
The purpose of this paper was to develop a CD program of applied logotherapy to improve the quality of life of adolescents with terminal cancer.
METHOD
Keller's ARCS theory and a model for developing internet learning materials (Kang) used to develop this program was comprised of four distinct phases: planning, designing, development, and execution stages.
RESULTS
This program was entitled 'Finding treasures in my life' and consisted of 5 sessions and its educational content was as follows: Treasure One, 'learning the three natures of the human mind', Treasure Two, 'learning creative value as the first method to find meaning in life', Treasure Three, 'learning experiential value as the second method to find meaning in life', Treasure Four, 'learning attitudinal value as the third method to find meaning in life', and Treasure Five, 'Becoming the master of my own life'. The sub-menu was made up of 'Beginning', 'What is it?', 'Travelling'. 'Laughing Song', 'End'.
CONCLUSIONS
This CD program applied logotherapy with flash animation techniques as an emotional and spiritual nursing intervention program for easier and more scientific application in pediatric oncology and hospice care.
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A Structural Model on the Quality of Life of Grandmothers Caring for their Grandchildren.
Jina Oh
J Korean Acad Child Health Nurs 2007;13(2):201-211.
PURPOSE
This study was designed to construct a structural model to explain the quality of life of grandmothers caring for their grandchildren.
METHOD
Data were collected by self-report questionnaires from 232 grandmothers caring for their grandchildren living in Busan. The data collection period was from June to Oct. 2006. Data analysis was done with SAS 9.13 for descriptive statistics and PC-LISREL 8.52 program for Covariance Structural analysis.
RESULTS
The findings found that the fit of the hypothetical model to the data was good, but considering theoretical implications and statistical significances of parameter estimates, paths and variables of the model were modified by excluding 2 paths. The Modified Model with 17 paths showed a good fitness to the empirical data (chi-square =15.492 (df=11, p=.161), GFI=.985 AGFI=.940 NFI=.982 RMSR=.037 RMSEA=.042). Health status, health problems, economical status, life events, caring stress, caring efficacy and life satisfaction had significant effects on quality of life in the grandmother caring their grandchildren, but of these variables, self-esteem was the most essential factor. All predictive variables of quality of life together explained 63.9% of the variance.
CONCLUSION
The derived model in this study was confirmed to be proper in explaining and predicting the quality of life of the grandmothers caring their grandchildren.
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A Study on Maternal Stress in Rearing Children with Disabilities and Maternal Quality of Life.
Jae Hyuk Lee, Hee Young Kim, Jong Hwa Lee
J Korean Acad Child Health Nurs 2007;13(1):5-12.
PURPOSE
The purpose of this study was to examine the level stress in rearing children and quality of life of mothers of children with disabilities and to identify the relationship between stress of rearing these children and quality of life of the mothers.
METHOD
A descriptive, correlational study design was used. The participants in this study were 225 mothers of children with disabilities. With SPSS, t-test, ANOVA, and Pearson's correlation coefficients were used to analyze the data.
RESULTS
1) The mean score for maternal stress in rearing children with disabilities was 3.46, and for quality of life, 2.80. 2) Stress in rearing these children had a negative correlation with quality of life (r=-.761, p=.000). CONCLUSION: It is suggested that intervention programs to decrease the stress of rearing these children and increase the quality of life should be offered to mothers of children with disabilities.
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Purpose
The purpose of this research was to examine the degree of care stress and the quality of life of grandmothers caring for their grandchildren while mother was employed. Method: A convenience sample of 107 grandmothers were measured for grandmother's care stress using a revised for of the PSI/SF and the quality of life tool by Andrew and Weinert. Descriptive statistics, t-test, and Pearson correlation coeffcients were used to analyze the data using SPSS/PC 10.0 Results: The results found that grandmothers' care stress was high according to their age and religion. Their quality of life was low according to their age, their present health status, income and sleep pattern. Their subjective care stress was a sense of social isolation, burden of caring for grandchildren, health problems, and conflict with adult children. Care stress and quality of life were found to be negatively correlated. This result was statistically significant. Conclusion: In conclusion, it was found that the care stress was high and affected quality of life. From this study it is proposed that there is a need to develop programs which consider grandmother' techniques in child care and health care to improve their quality of life. Ultimately, a good care environment for children will be good for the children's growth and development.
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