Purpose
Children with cerebral palsy (CP) and their parents experience various problems that can affect their quality of life. This study examined factors affecting the quality of life of children with CP.
Methods
A cross-sectional study was conducted in Yogyakarta, Indonesia, from January to August 2019. The participants were consecutively recruited children with CP aged 2 to 18 years and their parents. Ninety-eight children with CP and their parents, specifically their mothers, were recruited. Children’s health-related quality of life (HRQoL) was measured using the Pediatrics Quality of Life Cerebral Palsy. Parental HRQoL and stress were measured using the WHOQOL-BREF and Parenting Stress Index (PSI).
Results
Functional level V was the most common category for both Gross Motor Function Classification System (GMFCS) and Bimanual Fine Motor Function (BFMF) (35% and 28%, respectively). Children’s mean HRQoL was medium (49.81±20.35). The mean total PSI score was high (94.93±17.02), and 64% of parents experienced severe stress. Bivariate analysis showed that GMFCS, BFMF, number of comorbidities, presence of pain, and parental stress were significantly correlated with the total score for children’s HRQoL (p<.05). Multiple linear regression analysis (p<.05) demonstrated that more severe GMFCS and parental stress were associated with lower mean HRQoL scores in children.
Conclusion
Factors including the level of GMFCS and parental stress affected the HRQoL of children with CP. Parental stress management should be included in the comprehensive management of these children.

Citations

• Psycho-Social Quality of Life Among Children with Cerebral Palsy
  Malik Muhammad Naeem, Shahzadi Asma Tahseen, Imran Azam, Saba Afzal Shaikh, Raghab Iqbal
  Pakistan Journal of Health Sciences.2025; : 252.     CrossRef
• Proxy- and self-report evaluation of quality of life in cerebral palsy: Using Spanish version of CPQOL for Children and adolescents
  Alba Aza, Inmaculada Riquelme, María Gómez Vela, Marta Badia
  Research in Developmental Disabilities.2024; 154: 104844.     CrossRef
• Cerebral palsy: potential risk factors and functional status among children under three years, a case-control study in northwest Iran
  Morteza Haramshahi, Vahideh Toopchizadeh, Samira Pourzeinali, Neda Nikkhesal, Tahereh Sefidi Heris, Azizeh Farshbaf-Khalili, Shirin Osouli-Tabrizi
  BMC Pediatrics.2024;[Epub]     CrossRef

Purpose
This study aimed to conduct a concept analysis of health-related quality of life in children with epilepsy to promote conceptual clarification and facilitate mutual understanding of the concept.
Methods
Walker and Avant's concept analysis method was adopted.
Results
Health-related quality of life in children with epilepsy consists of six attributes: health status, inner strength, close relationships, resource-rich community, social acceptance, and changeability. According to the ecological system paradigm, these attributes are structured into five dimensions: organism, microsystem, macrosystem, exosystem, and chronosystem. These dimensions provide a comprehensive approach to the relationship between children with epilepsy and their environment. Epilepsy and interactions with multilevel ecological systems that are directly and indirectly related to children with epilepsy precede the concept, followed by positive and negative affective responses.
Conclusion
The findings of this study may support effective communication in various practice settings, thereby contributing to the health and well-being of children with epilepsy, as well as the development and expansion of interventions to improve their health-related quality of life.

Citations

• Periodontal Management to Improve Oral Health-related Quality of Life in an Adolescent Girl with Phenytoin-induced Gingival Enlargement: A Case Report
  Anika Dawar, Bhumika Gumber, Kanika Makker
  International Journal of Clinical Pediatric Dentis.2025; 18(5): 599.     CrossRef

Purpose
This study aimed to examine body image, self-esteem, and quality of life (QOL) in children and adolescents with Inflammatory bowel disease (IBD) and to analyze factors influencing QOL.
Methods
This descriptive study involved 87 participants at a tertiary hospital aged 10 to 18 years who were diagnosed with IBD. Body image, self-esteem, and QOL were measured. Descriptive analysis, the independent t-test, the Mann-Whitney U test, analysis of variance, Pearson correlation analysis, and stepwise multiple regression were used for data analysis.
Results
The average score was 16.95±3.55 for body image, 31.32±5.25 for self-esteem, and 78.64±15.98 for QOL. Height, weight, hospitalization experience, current symptoms, and consumption of oral steroids showed statistically significant effects on QOL. The most significant predictors of QOL were self-esteem (β=.31, p=.002), body image (β=.28, p=.005), number of symptoms (β=-.25, p=.004), and number of hospitalizations in the last year (β=-.24, p=.004).
Conclusion
To improve the QOL of children and adolescents with IBD, it is necessary to evaluate self-esteem, body image, and physical problems. In addition, various intervention strategies to improve self-esteem and body image and to reduce physical discomfort should be developed.

Citations

• Self-perception and adjustment to Crohn's disease in emerging and young adults: The clinical and psychosocial associated factors
  Nathalie Touma, Carolina Baeza-Velasco
  Pratiques Psychologiques.2025; 31(1): 41.     CrossRef
• Repercussões das Doenças Inflamatórias Intestinais no Desenvolvimento Socioemocional de Pacientes Pediátricos
  Cleicione Rosa de Oliveira, Patrícia Alvarenga, Catiele Paixão
  Revista Psicologia e Saúde.2023; : 93.     CrossRef
• Association between Childhood Onset Inflammatory Bowel Disease and Psychiatric Comorbidities in Adulthood
  Andreea Sălcudean, Andreea Georgiana Nan, Cristina Raluca Bodo, Marius Cătălin Cosma, Elena Gabriela Strete, Maria Melania Lica
  Diagnostics.2023; 13(11): 1868.     CrossRef
• Quality of Life Among Children with Inflammatory Bowel Disease in Saudi Arabia: A Cross-Sectional Study
  Abdulaziz A Alahmari, Sarah H AlShawaf, Huda A Meshikhes, Bedour A Aleid, Raghad M Aldossari, Marwa M Shafey, Ahmed A Aladsani, Abdulazeem A Al-ibraheem, Nawal M AlRubia, Saleh A AlQahtani
  International Journal of General Medicine.2022; Volume 15: 8775.     CrossRef

Purpose
This study aimed to determine the level of health-related quality of life (HRQoL) of children and adolescents who received hematopoietic stem cell transplantation (HSCT) and to examine factors influencing HRQoL.
Methods
This cross-sectional descriptive study involved 85 participants aged 10 to 19 years who received treatment from 3 months to 5 years after HSCT. Symptom experiences, stress and coping, self-esteem, social support, and HRQoL were measured. Descriptive analysis, the independent t-test, one-way analysis of variance, Pearson correlation analysis, and stepwise multiple regression were used for data analysis.
Results
The mean HRQoL score was 72.26 points out of 100. HRQoL showed statistically significant correlations with symptom experiences, stress, self-esteem, social support, satisfaction with peer relationships, and perceived attentiveness of the medical team. The most influential predictors of HRQoL were symptom experiences (β=-.51, p<.001) and satisfaction with peer relationships (β=.32, p<.001).
Conclusion
The experiences of different symptoms by children and adolescents who receive HSCT must be considered. In addition, nursing interventions, such as self-help meetings with peer groups, should be provided to improve their HRQoL.

Citations

• Patient and Caregiver Perceptions of Health-Related Quality of Life in Children and Adolescents After Allogeneic Hematopoietic Stem Cell Transplantation
  Marina Bonfill, Andrea Vilaplana, Carmen Conde, Carlota Aguilera, Cristina Diaz-de-Heredia
  SN Comprehensive Clinical Medicine.2025;[Epub]     CrossRef
• Body image, self-esteem, and quality of life in children and adolescents with inflammatory bowel disease in a tertiary hospital in South Korea
  Da Jeong Kum, Kyung-Sook Bang
  Child Health Nursing Research.2021; 27(2): 181.     CrossRef

Purpose
Hope has been identified as a protective factor that contributes to achieving a better quality to life, especially in patients with chronic disease. The purpose of this review was to synthesize current knowledge about the relationship between hope and quality of life among adolescents living with chronic illnesses.
Methods
We searched major English-language databases (PsycINFO, PubMed, and CINAHL) for studies from January 1, 2002 to July 12, 2019. Studies were included if they provided data on hope and its relationship with quality of life among adolescents with chronic diseases.
Results
In total, five articles were selected from the 336 studies that were retrieved. All five studies reported a positive correlation between hope and quality of life, such that people with a higher level of hope had a better quality of life. Hope was found to have direct and indirect effects on quality of life in adolescents with chronic diseases.
Conclusion
Healthcare professionals should make more efforts to enhance hope in adolescents with chronic diseases in order to improve their quality of life. Future studies exploring how hope develops in adolescents with chronic diseases and the long-term impact of hope on quality of life are necessary.

Citations

• Fear and Hope, The New Perspective of Iranian Women with Polycystic Ovary Syndrome: A Qualitative Study
  Roya Nikbakht, Katayoun Alidousti, Zahra Salajegheh
  Iranian Journal of Nursing and Midwifery Research.2026; 31(1): 67.     CrossRef
• Beyond the Visible: The Relationship Between Social Appearance Anxiety, Hopelessness, and Depression in Women with Urinary Incontinence
  Serap Canlı, Yeşim Çetinkaya Şen, İlknur Münevver Gönenç, Ayfer Tezel
  International Urogynecology Journal.2025; 36(6): 1197.     CrossRef
• Quality of Life, Self-Esteem, and Stress among First-Semester Student Nurses in Indonesia: A Cross-Sectional Study
  Maria Komariah, Theresia Eriyani, Laili Rahayuwati, Hana Rizmadewi Agustina, Furkon Nurhakim, Irman Somantri, Shurouq Ghalib Qadous, Aurawan Janmanee, Nina Gartika
  SAGE Open Nursing.2025;[Epub]     CrossRef
• Lessons From the Past, Hope for the Future: A Qualitative Study on the Lives of Leprosy-Affected Residents of a Leprosy Settlement in Malaysia
  Norana Abdul Rahman, Vaikunthan Rajaratnam, Noor Hanis M. Rafee, Cynthia Ramachandran, Ruth M. H. Peters, Karen Morgan, Mohamed Rusli Abdullah, Marjolein B. M. Zweekhorst
  Qualitative Health Research.2025;[Epub]     CrossRef
• Long-term (seven-year) follow-up of sensory-motor rehabilitation therapy for task-specific focal hand dystonia
  Katherine Butler, Anna Sadnicka, Mark J. Edwards, Jennifer Freeman
  Journal of Hand Therapy.2025; 38(4): 799.     CrossRef
• Artificial intelligence and patient narratives: A novel approach to assessing hope in patients with cancer
  Hakan Bozcuk, Halil Güzel, Mustafa Arici, Mustafa Yildiz, Murat Koçer, Bilgeşah Kiliçtaş, Mehmet Artaç, Gökhan Karakaya, Hasan Coşkun
  Medicine International.2025; 5(4): 1.     CrossRef
• Hope‐Promoting Communication With Pediatric Patients With Chronic Diseases and Their Families: A Scoping Review
  Willyane de Andrade Alvarenga, Ana Carolina Andrade Biaggi Leite, Thalicia Mendes de Carvalho, Barbara Victórya da Silva Gonzaga, Maria Francisca Soares de Morais, Larissa Pereira da Silva, Zaida Charepe, Lucila Castanheira Nascimento
  Journal of Nursing Scholarship.2025; 57(5): 776.     CrossRef
• Women’s adherence to medication and hope in the presence of another chronic disease besides breast cancer: a cross-sectional study
  Figen Akay, Ayşe Özkaraman, Öznur Bal
  Supportive Care in Cancer.2025;[Epub]     CrossRef
• A Phenomenological Study of the Lived Illness Experience of Adolescents with Chronic Glomerular Disease
  Sug Young Lee
  Children.2025; 12(12): 1671.     CrossRef
• The effect of group quality of life therapy on hope and health-related quality of life in patients with major depressive disorder: A randomized controlled trial
  Mohammad Malekzadeh, Simin Kokabiasl, Milad Amiri
  Journal of Education and Health Promotion.2025;[Epub]     CrossRef
• Exploration of Hope Among Young Adults with Cancer in Malaysia
  Sahira Sabri, Nur Atikah Mohamed Hussin, Weng-Tink Chooi
  Journal of Adolescent and Young Adult Oncology.2024; 13(1): 213.     CrossRef
• Translation and cultural adaptation of “Glasgow Children’s Benefit Inventory” into Brazilian Portuguese
  Caroline Catherine Lacerda Elias, Adriane Ribeiro Teixeira, Maria Eduarda Claro de Souza, Letícia Petersen Schmidt Rosito, Sady Selaimen da Costa
  Brazilian Journal of Otorhinolaryngology.2024; 90(1): 101353.     CrossRef
• Effect of Language Barriers and Use of Interpreters on Hope Among Patients With Central Nervous System Malignancies and Bone Metastases
  Caressa Hui, Jen Hall, Zhihui Fang, Sydney Lefebvre, Melanie Hayden-Gephart, Gordon Li, Antonio Meola, Seema Nagpal, Scott Soltys, Erqi Pollom
  International Journal of Radiation Oncology*Biolog.2024; 119(3): 838.     CrossRef
• Based on the relationship between anxiety of existential meaninglessness, hope level, and fear of progression, explored the effect of preoperative nursing with Orem theory in the senile cataract population
  Yanli Zhang, Yanmiao Cheng, Yan Liang, Mengfei Shao, Aiai Chen
  Frontiers in Psychology.2024;[Epub]     CrossRef
• The relationship between anxiety and depression in adolescent depression patients: The mediating effect of hope level and coping modes
  Yan Lin, Zhihan Chen, Mengjiao He, Weiqing Zhou, Lina Wang, Hua Guo, Kaizong Huang
  Heliyon.2024; 10(15): e35466.     CrossRef
• Hope as Perceived by Children and Adolescents During the COVID-19 Pandemic
  Kaye A. Herth
  Pediatric Nursing.2024; 50(1): 17.     CrossRef
• Concept Analysis of Resilience in Adolescent Living with HIV: Review of Limitations and Implications
  Indita Wilujeng Astiti, Iyus Yosep, Taty Hernawaty
  JURNAL INFO KESEHATAN.2024; 22(1): 190.     CrossRef
• Voices of Hope: Leveraging Think-Aloud Cognitive Interviews to Develop a Hope Assessment Tool for Young People Living with Chronic Health Conditions
  Emily von Scheven, Mitchell Braun, Bhupinder Nahal, Emily R. Perito, Paul Brakeman, William Daniel Soulsby, Laura Quill, Addison Cuneo, Linda S. Franck
  Children.2024; 11(11): 1396.     CrossRef
• Investigating various interventions to improve the quality of life of children and adolescents suffering from chronic diseases – a systematic review
  FatemehSadat SeyedNematollah Roshan, Narges Rahmani, Leila Nikrouz
  International Journal of Adolescent Medicine and H.2024; 36(6): 525.     CrossRef
• Hope and pediatric health
  Brittany D. Lancaster, Jason Van Allen
  Current Opinion in Psychology.2023; 49: 101500.     CrossRef
• Leisure Learning's Contribution: Effects on Torah and Other Enrichment Learners
  Hana Gendel Guterman, Ora Elkan, Talma Kushnir, Nitza Davidovitch
  World Leisure Journal.2023; 65(3): 343.     CrossRef
• The mediation role of self-esteem and hope on the relationship of quality of life and unmet needs of elderly with psychiatric disorders
  Mariye Jenabi Ghods, Ladan Fattah Moghaddam, Mohammad Javad Hosseinabadi-Farahani, Mohammad Pourebrahimi
  Journal of Education and Health Promotion.2023;[Epub]     CrossRef
• Congratulations on Child Health Nursing Research becoming a PubMed Central journal and reflections on its significance
  Sun Huh
  Child Health Nursing Research.2022; 28(1): 1.     CrossRef
• Hope and Quality of Life among Adolescent with Thalassemia: A Cross-sectional Study in Indonesia
  Ai Mardhiyah, Henny Suzana Mediani, Santhna Letcmi Panduragan, Iyus Yosep, Linlin Lindayani
  Open Access Macedonian Journal of Medical Sciences.2022; 10(G): 667.     CrossRef
• Development and Psychometric Testing of a Children’s Version of the Herth Hope Index
  Kaye Herth, Sara M. Sarasua
  Journal of Nursing Measurement.2022; 30(4): 627.     CrossRef
• Waves of family hope: narratives of families in the context of pediatric chronic illness
  Ana Carolina Andrade Biaggi Leite, Cristina García-Vivar, Francine DeMontigny, Lucila Castanheira Nascimento
  Revista Latino-Americana de Enfermagem.2021;[Epub]     CrossRef

Purpose
Quality of life is important to everyone including school-age children. Therefore this study was done to identify the effects perceived daily stress and sense of humor on quality of life for these children.
Methods
The study was a cross-sectional, descriptive study design with 371 participants from 5th and 6th grade children in 5 elementary schools. Data were analyzed using descriptive statistics, t-test, ANOVA, Pearson correlation coefficients, and multiple regression analysis with SPSS/WIN 24.0 program.
Results
Factors influencing quality of life in school-age children were daily stress, sense of humor, satisfaction with daily life, academic performance and home atmosphere. These variables explained 63.0% of quality of life in school-age children.
Conclusion
Results showed that lower daily stress and higher sense of humor are associated with higher quality of life. Therefore, to improve quality of life in school-age children, healthcare providers should develop intervention programs considering these factors.

Citations

• Çocuklarda Mizah Ölçeğinin (4-12 yaş) Geliştirilmesi ve Çocukların Mizah Eğilimlerinin İncelenmesi
  Arzu Özyürek, Hatice Keser, Nagihan Yıldırım
  Uluslararası Erken Çocukluk Eğitimi Çalışmaları De.2024; 9(2): 65.     CrossRef
• Factors affecting the mental health status of children from multicultural families in South Korea: a cross-sectional descriptive analysis of data from the multicultural adolescents panel study
  Sunyeob Choi
  Child Health Nursing Research.2023; 29(1): 60.     CrossRef
• Research Trends in Daily Stress Among Children and Adolescents: Articles Published from 2010 to 2020 in Korea
  Sungmin Park, JungHa Lim
  Korean Journal of Child Studies.2021; 42(1): 89.     CrossRef
• A Study on Child Friendliness in the G Local Community and Life Satisfaction of Children and Adolescents
  Ara Choi, Hye sun Kim, Sook Lee
  The Korean Journal of Community Living Science.2019; 30(3): 377.     CrossRef

Purpose
In this study factors affecting quality of life in mothers who have children with precocious puberty were identified.
Methods
The participants were 102 mothers of children with precocious puberty. From September 12 to September 30, 2016, data were collected using a structured questionnaire and analyzed using SPSS/WIN 22.0.
Results
Regression analysis showed that the model’s explanatory power was 45%(F=28.71, p<.001). Role stress (t=-4.83, p<.001), objective burden (t=-2.71, p<.001), and average monthly income (t=4.12, p<.001) were factors affecting quality of life among these mothers. The most influential factor was role stress (β=-.41), which showed a negative correlation.
Conclusion
Role stress and objective burden were major factors that decreased the quality of life in these. The findings indicate that effective strategy programs for reducing role stress and objective burden are necessary to improve the quality of life in mothers of children with precocious puberty.

Citations

• Exploring the Relationship between Parental Stress and Child Behavioral Problems in Precocious Puberty: The Role of Parenting and Coping Strategies
  Young Il Cho, Ahreum Kwon, Hyo Jin Kim, Eun Seo Park, Junghwan Suh, Dong Hee Kim
  Yonsei Medical Journal.2025; 66(7): 421.     CrossRef
• The mediating effects of parenting style on the relationship between parental stress and behavioral problems in girls with precocious puberty in Korea: a cross-sectional study
  Ahreum Kwon, Young Il Cho, Hyo Jin Kim, Junghwan Suh, Dong Hee Kim
  BMC Pediatrics.2023;[Epub]     CrossRef
• Puberte Prekoksun Psikososyal Etkileri
  Mukaddes Turan Miral, Nevin Hotun Şahin
  Turkish Journal of Pediatric Disease.2022; 16(2): 168.     CrossRef
• Psychosocial adaptation to precocious puberty: A nursing support program
  Mukaddes Turan Miral, Nevin Hotun Sahin
  Journal of Child and Adolescent Psychiatric Nursin.2022; 35(3): 285.     CrossRef
• Perceptions and Treatment of Precocious Puberty: A Questionnaire Survey among Caregivers in South Korea
  Soo Bo Shim, Ji Hyun Song, Hye Lim Lee, Chou-Chin Lan
  Evidence-Based Complementary and Alternative Medic.2022; 2022: 1.     CrossRef
• Mothers' Experiences of Caring for Children with Precocious Puberty: A Q-Methodological Approach
  Hye Jin Lee, Mi-Ae You
  Journal of Korean Academy of Nursing.2020; 50(2): 255.     CrossRef
• Effect of a Social Support Program for Mothers of Children with Precocious Puberty: A Preliminary Quasi-Experimental Study
  Jaeyoung Lee, Min Jung Kwak, Hyeon Ok Ju
  Journal of Pediatric Nursing.2019; 46: e2.     CrossRef

Purpose
The aim of this study was to explore how characteristics of ADHD children affect social support for mothers, parenting stress, parenting sense of competence, coping, and quality of life. The conceptual model was based on the Lazarus and Folkman’s stress-evaluation- coping theory.
Methods
Data were collected 208 mothers of children with ADHD. Data were analysed using SPSS 18.0 and AMOS 18.0 programs.
Results
The proposed model was good fit for the data based on the model fit indices. Parenting stress, parenting sense of competence and coping directly affected quality of life but characteristics of the children and social support had only an indirect effect. The explanatory power of these variables was 52.1%.
Conclusion
The results of this study indicate that nursing strategies to increase social support for mothers with ADHD children, lowers parenting stress, improves parenting sense of competence, and guides the parents to choose appropriate coping. In particular, as social support has the strongest influence on the quality of life, it is necessary to develop nursing intervention programs that utilize social support for parents with ADHD children.

Citations

• Structural Equation Modeling for Quality of Life of Mothers of Children with Developmental Disabilities: Focusing on the Self-Help Model
  Mi Ran Yang, Mi Yu
  Journal of Korean Academy of Nursing.2022; 52(3): 308.     CrossRef

Purpose
The purpose of this study was to understand the intellectual and psychological features of children with Moyamoya disease who were patients in the Department of Pediatric Neurosurgery of Severance Hospital.
Methods
From December 2010 through December 2012, 63 patients with diagnoses of Moyamoya disease and 59 children in a normal group were enrolled. This study was conducted using the Korean-Wechsler Intelligence Scale for Children, Rey-Kim Memory Test for children, Korean Child Behavior Checklist and Pediatric Quality of Life Inventory^TM4.0.
Results
The results showed that the intellectual and psychological profiles of children with Moyamoya disease were lower than the average of the normal control group. The tested patients showed significantly lower scores for Performance Intelligence Quotient cognition level. Also, in terms of quality of life, children with Moyamoya disease had lower levels of physical and school functionality. The results were in line with those of previous studies involving psychological tests of children with chronic diseases.
Conclusion
Considering the intellectual and psychological characteristics of children with Moyamoya disease, integrated psychological intervention plans including elements such as supportive therapy for patients and programs for parental education are required.

Citations

• Structural equation model based on salutogenesis theory for evaluating factors affecting health-related quality of life in adolescents with moyamoya disease
  Won-oak Oh, Insun Yeom, Sung-Hyun Lim
  Scientific Reports.2022;[Epub]     CrossRef
• Features and diversity of symptoms of moyamoya disease in adolescents: A cluster analysis
  Won‐Oak Oh, Kyu Won Shim, Insun Yeom, Il Tae Park, YooJin Heo
  Journal of Advanced Nursing.2021; 77(5): 2319.     CrossRef
• Factors Influencing Health Behavior Compliance in Adult Moyamoya Patients
  Bo Eun Kim, Ju-Eun Song
  Journal of Korean Academy of Nursing.2021; 51(1): 80.     CrossRef
• The Moyamoya Health Behavior Scale for Adolescent Patients: Measurement Tool Development and Psychometric Evaluation
  Won-oak Oh, Insun Yeom, Sung-Hyun Lim, Dong-Seok Kim, Kyu-won Shim
  International Journal of Environmental Research an.2021; 18(8): 4064.     CrossRef
• Stress and mood of adults with moyamoya disease: A cross‐sectional study
  Yong Sook Yang, Gi Wook Ryu, Insun Yeom, Kyu Won Shim, Mona Choi
  Nursing & Health Sciences.2020; 22(3): 795.     CrossRef

Purpose
The purpose of this study was to validate the Korean version of the TNO-AZL Preschool Children Quality of Life (TAPQOL) questionnaire for children aged 18-60 months.
Methods
The participants were 223 mothers of healthy children from nurseries and kindergartens, and 54 mothers of hospitalized children from a university children’s hospital in Korea. Data were collected in 2011. Principal component factor analysis and known-groups method were used to confirm construct validity, and internal consistency was used to determine reliability.
Results
According to the factor analysis, 11 factors with an eigenvalue over 1 were extracted, and these factors explained 73.5% of the variance. All dimensions except two had Cronbach’s alpha coefficients greater than .7. The mean TAPQOL scores of the hospitalized group were significantly lower than those of the healthy group (p = .001) for all four functions (physical, emotional, social, and cognitive).
Conclusion
The TAPQOL showed acceptable validity and reliability, and can be used to measure children’s health-related quality of life in Korea, and can be considered for use in other Asian countries.

Citations

• Portuguese Validation of the TAPQoL: A Health-Related Quality of Life Instrument for Children Aged 0–6 Years
  Ana Ferraz, Martim Santos, M. Graça Pereira
  European Journal of Investigation in Health, Psych.2024; 14(2): 399.     CrossRef

PURPOSE
This study was conducted to survey knowledge, compliance, and quality of life of mothers who have children with atopic dermatitis, and to determine whether above mentioned factors influence each other.
METHODS
The participants in this study were 165 mothers of children with atopic dermatitis recruited from one out-patient clinic in a hospital in Seoul. The data were collected between March 8, and April 16, 2010 using a structured questionnaire.
RESULTS
The mean score for participants' knowledge was 4.17/5, for compliance, 4.27/5 and for quality of life, 3.42/5. Among the five domains of quality of life, emotional status had the lowest score (3.20/5). Knowledge was significantly correlated with compliance (r=.215, p<.005). However, quality of life was not correlated with knowledge (r=-.069) and compliance (r=-.077).
CONCLUSION
Accurate knowledge affects compliance of mothers of children with atopic dermatitis. Therefore, to increase the level of compliance, it is necessary to enhance the knowledge of the mothers. Results also suggest that interventions are needed to improve poor quality of life, particularly the emotional condition of mothers of children with atopic dermatitis.

Citations

• A Cross-Sectional Study on Prevalence and Socio-Demographic Correlates of Hypertension in Peri-urban Community of Kashmir Valle
  Uroosa Farooq Allaqband, Anjum B Fazili, Rohul Jabeen Shah, Javeed Ahmad Parray
  Healthline.2021; 12(1): 55.     CrossRef
• Evaluation of nutritional status and adequacy of energy and nutrient intakes among atopic dermatitis children under 12 years of age: based on Korea National Health and Nutrition Examination Survey data (2013–2015)
  Hye Won Kim, Ji-Myung Kim
  Journal of Nutrition and Health.2020; 53(2): 141.     CrossRef
• Effects of the Mother-Medical Staff Partnership on Mothers’ Condition Management Ability for Children with Chronic Allergic Diseases
  Hae Kyoung Son, Hyo Bin Song, Dong Hee Kim
  Child Health Nursing Research.2018; 24(1): 101.     CrossRef
• A Comparative Study of Family Management Style According to Severity of Childhood Atopic Dermatitis
  Hae Kyoung Son, Hee-Soon Kim
  Child Health Nursing Research.2016; 22(4): 309.     CrossRef
• Current Status in Management of Children with Atopic Dermatitis and Knowledge and Practice of Preschool Teachers.
  In Sook Cho, Se Ang Ryu
  Child Health Nursing Research.2013; 19(1): 49.     CrossRef

PURPOSE
The purpose of this study was to describe quality of life in school age children and the relationship between quality of life and parenting attitude as perceived by children and parent-child communication pattern.
METHODS
Data were collected between May 26 and June 3, 2009 using self-report questionnaires from 148 pairs of children and their parents. The children were enrolled in 4th to 6th grades. The questionnaires included the Parental Bonding Instrument (PBI), Parent-Child Communication (PCC) Scale, and Pediatric Quality of Life Inventory (PedsQL). The data were analyzed using the SPSS WIN 17.0 program.
RESULTS
The Quality of Life (QOL) score for the children was significantly higher among children reporting higher parental bonding attitude (mother r=.38, father r=.34) and parent-child communication (mother r=.43, father r=.36).
Results
of multiple regression showed that factors significantly associated with QOL were academic achievement, caregiver available after school, parent-child communication, school satisfaction, relationship with peers, and birth order among siblings.
CONCLUSION
Positive relationships and good communication with parents and satisfaction with school life were important factors associated with quality of life in school age children.

Citations

• Collaboration between School and Home to Improve Subjective Well-being: A New Chinese Children’s Subjective Well-being Scale
  Meijie Chu, Zhiwei Fang, Chun-Yang Lee, Yi-Han Hu, Xian Li, Shih-Han Chen, Tianmu Chen, Xuehui Chen, Yi-Chen Chiang
  Child Indicators Research.2023; 16(4): 1527.     CrossRef
• The development and effects of the logotherapy-based ego-identity improvement program with the application of group art activities in late school-aged children
  Young-Sook Lim
  International Journal of ADVANCED AND APPLIED SCIE.2022; 9(12): 89.     CrossRef
• Positive parenting and its mediating role in the relationship between parental resilience and quality of life in children with developmental disabilities in Java Island, Indonesia
  Yapina Widyawati, R.H.J Scholte, Tijs Kleemans, Roy Otten
  Research in Developmental Disabilities.2021; 112: 103911.     CrossRef
• Self-efficacy, post-traumatic growth, and quality of life of pediatric cancer survivors: A cross-sectional study
  Yeunhee Kwak, Yoonjung Kim, Eun Seok Choi, Ho Joon Im
  European Journal of Oncology Nursing.2021; 54: 102019.     CrossRef
• Effects of Perceived Daily Stress and Sense of Humor on Quality of Life among School-Age Children
  Hyun-Yi Chai, Mi-Young Choi
  Child Health Nursing Research.2018; 24(1): 18.     CrossRef
• The Relationships among Perceived Parental Bonding, Illness Perception, and Anxiety in Adult Patients with Congenital Heart Diseases
  Nayeon Shin, Youha Jang, Younhee Kang
  Journal of Korean Academy of Nursing.2017; 47(2): 178.     CrossRef
• Health-Related Quality of Life in the Early Childhood of Premature Children.
  Eun Hee Lim, Hyeon Ok Ju
  Child Health Nursing Research.2015; 21(1): 37.     CrossRef
• Quality of Life in Children and Adolescents with Cancer.
  Jung Won Lee, Ji Eun Han, Ho Ran Park
  Child Health Nursing Research.2013; 19(1): 21.     CrossRef
• Factors Influencing Health-Related Quality of Life of Overweight and Obese Children in South Korea
  Hee Soon Kim, Jiyoung Park, Yumi Ma, Ok Kyung Ham
  The Journal of School Nursing.2013; 29(5): 361.     CrossRef

PURPOSE
The purpose of this research was to develop an interpersonal caring program "Muldan Dongsan" for vulnerable adolescents in mental health clinics and to identify the effect of this program.
METHODS
The interpersonal caring program was composed of group interpersonal caring (one time per week for two weeks, for a total of 8 hr) and individual interpersonal caring (1-2 times per day for 2 weeks). For this research, a non-synchronized quasi-experimental model including nonequivalent experimental and control groups was used. The experimental group was made up of 17 students and the control group, of 22 students. The data were collected from May 11 to July 25, 2009 and the collected data were analyzed using the SPSS/WIN 17.0 program.
RESULTS
The interpersonal caring program "Muldan Dongsan" was effective for mental health, including self-esteem, hope, and quality of life for vulnerable adolescents.
CONCLUSION
The positive findings on the effectiveness of the interpersonal caring program "Muldan Dongsan" and the participants' high satisfaction with this program indicate that it can be utilized actively as a specific nursing intervention program for adolescents at school and in the community.

Citations

• Analysis of Korean Nursing Studies Applied in Interpersonal Caring Theory
  Heeyoung Kim
  Journal of Korean Academy of Fundamentals of Nursi.2020; 27(2): 116.     CrossRef

PURPOSE
This study was designed to identify how parenting stress and empowerment affect the quality of life in caregivers of children with disabilities. METHODS: Caregivers assuming parenting responsibilities for children with disabilities under 18 yr of age were recruited at 8 local welfare centers, homes for children with disabilities, and parent associations in U city. They were asked to complete a questionnaire in a face to face interview or by self-report, and 265 data units were analyzed with stepwise multiple regression. RESULTS: Parenting stress, empowerment and monthly income were statistically significant explaining 39% of the variance. Among the subconstructs of parenting stress and empowerment, parental distress (beta=-.42, t=-6.45) and competence (beta=.30, t=3.59) significantly influenced quality of life. Among the general characteristics, monthly income (beta=.10, t=2.01) was found to be significantly related to quality of life. CONCLUSION: Nurses who work with children with disabilities and their caregivers need to focus on parental distress and competence to improve the quality of life of caregivers and to stimulate development in children with disabilities.

Citations

• Action Research for Parent Empowerment of Married Immigrant Women
  Boyoung Kim
  Journal of Korean Academy of Psychiatric and Menta.2013; 22(1): 65.     CrossRef
• Family Empowerment Scale: Factor Validation of the Original Form and Development of a Short Form
  Soyon Jung
  The Journal of the Korea Contents Association.2013; 13(7): 214.     CrossRef
• A Path Analysis of the Variables Related to the Quality of Life of Mothers with Disabled Children in Korea
  Kyung Seu Cho, Eun Joo Hong
  Stress and Health.2013; 29(3): 229.     CrossRef

PURPOSE
This study was done to assess the home nursing and quality of life of parents caring for preschool children with atopic dermatitis and to identify the factors which influence quality of life. METHODS: Participants in the study were 149 parents of preschool children with atopic dermatitis attending a kindergarten and a nursery school in S city. Parent completed a set of questionnaires (assessing demographic factors, home nursing, quality of life). Descriptive analysis, t-test, ANOVA and multiple regression were used to analyze the data. RESULTS: The mean score for home nursing was 3.06+/-0.38 and for quality of life, 4.18+/-0.74. The lowest scored question in the 13 question on quality of life was that of frustration related to itching sensation. Significant factors that affect quality of life were severity and home care. These variables explained 21% of variance in quality of life (F=21.17, p<.001). CONCLUSION: The results indicate that severity of childhood atopic dermatitis and home nursing impact on the quality of life of parents. Using the above findings, health professionals who work with children with atopic dermatitis and their parents need to develop specific nursing interventions that will promote health of children with atopic dermatitis and quality of life in their parents.

Citations

• Factors Influencing the Quality of Life in Mothers of Children with Precocious Puberty
  Suyoung Lee, Gaeun Kim
  Child Health Nursing Research.2017; 23(3): 312.     CrossRef
• Family quality of life among families of children with atopic dermatitis
  Hae Ji Jang, Seonyeong Hwang, Youngmee Ahn, Dae Hyun Lim, Min Sohn, Jeong Hee Kim
  Asia Pacific Allergy.2016; 6(4): 213.     CrossRef
• A Comparative Study of Family Management Style According to Severity of Childhood Atopic Dermatitis
  Hae Kyoung Son, Hee-Soon Kim
  Child Health Nursing Research.2016; 22(4): 309.     CrossRef
• The Effect of Essential Oil on Atopic Dermatitis Model of NC/Nga Mice
  Sun Hee Han, Young Mi Seo
  Journal of Korean Biological Nursing Science.2014; 16(3): 219.     CrossRef
• Current Status in Management of Children with Atopic Dermatitis and Knowledge and Practice of Preschool Teachers.
  In Sook Cho, Se Ang Ryu
  Child Health Nursing Research.2013; 19(1): 49.     CrossRef
• Prevalence Rate and Factors Associated with Atopic Dermatitis among Korean Middle School Students
  Ji Won Oak, Hea Shoon Lee
  Journal of Korean Academy of Nursing.2012; 42(7): 992.     CrossRef
• A Study to Assess the Need of Customized Visiting Health Care Services for Children according to Socioeconomic Status in a Province
  Hee Ja Kim, Kyung-Sook Bang, Jae Soon Yoo, Hyun Sook Kim, Yang Ju Tak, Bo Yun Huh
  Journal of Korean Academy of Community Health Nurs.2011; 22(2): 212.     CrossRef
• Knowledge, Compliance and Quality of Life of Mothers of Children with Atopic Dermatitis
  Min-Ju Kim, Mi-Hye Choi
  Journal of Korean Academy of Child Health Nursing.2011; 17(4): 272.     CrossRef

PURPOSE
To evaluate the effects of a logotherapy education program.
METHODS
A nonequivalent control group, non-synchronized design was conducted with a convenience sample of 29 children with cancer. The experimental group (n=17) participated in the logotherapy education program which consisted of 5 daily sessions for one week. The control group (n=12) received the usual nursing care. The effects were measured using suffering, adolescent meaning in life (AMIL), and spiritual well-being (SWBS) scales.
RESULTS
There were significant differences in suffering (W=153.00, p< .05) and meaning in life (W=78.00, p< .05) between the experimental and control groups. However, there was no significant difference in spiritual well-being (W=136.50, p> .05).
CONCLUSIONS
Logotherapy was effective in reducing suffering and improving the meaning in life. Logotherapy can be utilized for adolescents with terminal cancer to prevent existential distress and improve their quality of life.

Citations

• Logotherapy and its potential for psychological rehabilitation
  Yu. V. Severina, V. E. Epishin
  Journal of Medical Rehabilitation.2025; 2(4): 385.     CrossRef
• Preliminary effectiveness and feasibility of an integrated hope techniques and narrative-based card game intervention for pediatric cancer patients in China: a randomized controlled trial
  Qi Liu, Ka Yan Ho, Katherine Ka Wai Lam, Frances Kam Yuet Wong, Winsome Lam, Frankie Cheng, Huaxin Wei, Kitty Chan, Mao Ting, Fu Na Yang, Pin Xiao, Tiannu Luo, Hai Xia Wang, Janelle Yorke
  BMC Medicine.2025;[Epub]     CrossRef
• Effectiveness of a grief programme for sudden bereavement: A logotherapy approach
  Kyung Seo, Jiyoung Chun
  Death Studies.2025; : 1.     CrossRef
• Adverse childhood experiences and spiritual well-being among Turkish people: A serial mediation through meaningful living and death obsession
  Hacer Yildirim Kurtulus, Seydi Ahmet Satici, M. Engin Deniz
  Journal for the Study of Spirituality.2025; : 1.     CrossRef
• „Righteous perseverance”- a logotherapeutic explanation of the meaning of suffering. Implications for education and prevention
  Katarzyna Jarosz
  Studia z Teorii Wychowania.2025; XVI(3 (52)): 183.     CrossRef
• Spiritual Interventions Among Pediatric Patients With Cancer: A Systematic Review And Meta-Analysis
  Qi Liu, Ling Jiang, Ka Yan Ho, Katherine K.W. Lam, Winsome Lam, Funa Yang, Ting Mao, Mei Sun, Biyu Shen, Jacqueline MC Ho, P.K. Liu, S.Y. Chiu, Frances-Kam-Yuet Wong
  Journal of Pain and Symptom Management.2024; 68(1): e8.     CrossRef
• A Hypothetical Case Formulation Using Event-Meaning Coupling to Promote Insight into Chronic Pain Experience
  Kwee-Yum Lee
  International journal of Pain.2024; 15(1): 37.     CrossRef
• Sibling coalitions in the context of parental child maltreatment
  Carmit Katz, Noa Cohen, Dafna Tener, Or‐Yuval Sharabi
  Child & Family Social Work.2023; 28(1): 279.     CrossRef
• The effect of logotherapy-based, nurse-guided meaning attribution conversations on women diagnosed with gynecologic cancer: A Turkish pilot study
  Ruveyde Aydın, Kamile Kabukcuoğlu
  Women & Health.2023; 63(8): 599.     CrossRef
• The Impact of the Logotherapy-Based Spiritually Oriented Group Counseling on Meaning in Life and Multi-Measure Agentic Personality Levels of Emerging Adults
  Hatice Vildan Yıldız
  Spiritual Psychology and Counseling.2023; 8(1): 27.     CrossRef
• The Effects of Logotherapy on Distress, Depression, and Demoralization in Breast Cancer and Gynecological Cancer Patients
  Fan-Ko Sun, Chao-Ming Hung, YuChun Yao, Chi-Feng Fu, Pei-Jung Tsai, Chun-Ying Chiang
  Cancer Nursing.2021; 44(1): 53.     CrossRef
• Ethical challenges of caring for burn patients: a qualitative study
  Mostafa Bijani, Fateme Mohammadi
  BMC Medical Ethics.2021;[Epub]     CrossRef
• Effect of Psycho-Socio-Spiritual Strategies on Hope Level of Patients with Cancer: A Narrative Review
  Marzieh Azizi, Forouzan Elyasi, Somayyeh Naghizadeh, Azam Mohammadi, Mahsa Kamali, Mahboobe Shirzad
  Iranian Journal of Psychiatry and Behavioral Scien.2021;[Epub]     CrossRef
• The effects of psycho-education program based on logotherapy for the development of a healthy sense of identity in emerging adulthoods
  Esat Şanlı, Kurtman Ersanli
  Current Psychology.2021; 40(9): 4173.     CrossRef
• Effectiveness of Acceptance and Commitment Therapy and Logotherapy on Happiness of Veterans' Spouses
  M. Falahati, A. Shafiabady, M. Jajarmi, M. Mohamadipoor
  Iranian Journal of War and Public Health.2020; 12(1): 43.     CrossRef
• Caregivers’ perception of dignity in teenagers with autism spectrum disorder
  Fatemeh Mohammadi, Mahnaz Rakhshan, Zahra Molazem, Najaf Zareh, Mark Gillespie
  Nursing Ethics.2019; 26(7-8): 2035.     CrossRef
• The Efficacy of Group-Based Logotherapy on Hope of Life in HIV Patients in North of Iran
  Fataneh Bakhshi, Tahereh Yektaee, Khadijeh Hajimiri, Mehrnoosh Inanlou
  Caspian Journal of Health Research.2019; 4(1): 16.     CrossRef
• Meaning-Centered Interventions for Patients With Advanced or Terminal Cancer
  Kyung-Ah Kang, Suk-Jung Han, Young-Sook Lim, Shin-Jeong Kim
  Cancer Nursing.2019; 42(4): 332.     CrossRef
• The effectiveness of logotherapy program based on Islamic-Iranian values on marital satisfaction among parents of exceptional children
  Neda Farahini, Gholam Ali Afrooz, Bagher Ghobari Bonab, Ali Akbar Arjmand Nia
  Family Psychology.2019; 6(1): 15.     CrossRef
• The Influence of Psychocurative on Cortisol Level, Anxiety, and Quality of Life in Advanced Stage Cervical Cancer Patients
  Soetrisno Soetrisno, Sri Mulyani, Hafi Nurinasari, Hafi Nurinasari, Erindra Budi
  Folia Medica Indonesiana.2019; 55(3): 202.     CrossRef
• The effects of psychological meaning-centered therapies on quality of life and psychological stress: A metaanalysis
  Joël Vos, Diego Vitali
  Palliative and Supportive Care.2018; 16(5): 608.     CrossRef
• An Integrative Review of Meaning-Centered Intervention Studies for Patients with Advanced or Terminal Cancer
  Kyung Ah Kang, Suk Jung Han, Shin Jung Kim, Young Sook Lim
  Asian Oncology Nursing.2018; 18(4): 173.     CrossRef
• The effect of logotherapy on the expressions of cortisol, HSP70, Beck Depression Inventory (BDI), and pain scales in advanced cervical cancer patients
  Soetrisno, Sri Sulistyowati, Adhitya Ardhianto, Syamsul Hadi
  Health Care for Women International.2017; 38(2): 91.     CrossRef
• Meaning in stroke family caregiving: A literature review
  Jingjun Zhang, Diana T.F. Lee
  Geriatric Nursing.2017; 38(1): 48.     CrossRef
• Purposefulness as a critical factor in functioning, disability and health
  Joshua Y Lee, Emily A Ready, Eric N Davis, Philip C Doyle
  Clinical Rehabilitation.2017; 31(8): 1005.     CrossRef
• Adaptation Experience and Social Support Network of Adolescent Cancer Survivors
  Eunji Cho, Eun Sook Park
  Child Health Nursing Research.2017; 23(2): 238.     CrossRef
• State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions
  Tracy A. Balboni, George Fitchett, George F. Handzo, Kimberly S. Johnson, Harold G. Koenig, Kenneth I. Pargament, Christina M. Puchalski, Shane Sinclair, Elizabeth J. Taylor, Karen E. Steinhauser
  Journal of Pain and Symptom Management.2017; 54(3): 441.     CrossRef
• Effectiveness of group logotherapy on death anxiety and life expectancy of the elderly living in boarding houses in Kerman
  Amir Hossein Hajiazizi, Behnaz Bahmani, Nafiseh Mahdi, Vahid Manzari Tavakoli, Adibeh Barshan
  Salmand.2017; 12(2): 220.     CrossRef
• The Theory of Meaning in Hospice Care
  Patricia L. Starck
  The Korean Journal of Hospice and Palliative Care.2017; 20(4): 221.     CrossRef
• Effectiveness of Meaning-Centered Psychotherapy on Existential Anxiety and Fear of Cancer Recurrence in Breast Cancer Survivors: A Randomized Clinical Trial
  Sara Mozafari, Isaac Rahimian Boogar, Siavash Talepasand, Farahnaz Ghahreman Fard
  Women's Health Bulletin.2017;[Epub]     CrossRef
• Relationship Between Early Maladaptive Schemas and Meaning of Life and Psychological Well-Being of the Elderly
  Soheila Orang, Hadi Hashemi Razini, Mohammad Hosein Abdollahi
  Salmand.2017; 12(3): 326.     CrossRef
• The Effectiveness of Acceptance and Commitment Group Therapy and Group Logotherapy in Reducing Perceived Stress among MS Patients
  Fatemeh Amir, Hasan Ahadi, Karim Nikkhah, Mohammadreza Seirafi
  Caspian Journal of Neurological Sciences.2017; 3(11): 175.     CrossRef
• RELATIONSHIP BETWEEN DEMOGRAPHIC CHARACTERISTICS AND SPIRITUAL WELLBEING AMONG CANCER SURVIVORS
  Eviwindha Suara, Mardiyono Mardiyono, Anggorowati Anggorowati
  Belitung Nursing Journal.2017; 3(4): 405.     CrossRef
• The Role of Religious Coping in Perception of Suffering among Patients Undergoing Dialysis
  Zahra Nikmanesh, Samane Azaraein
  Jundishapur Journal of Chronic Disease Care.2016;[Epub]     CrossRef
• Theories guiding nursing research and practice: making nursing knowledge development explicit By Joyce J.Fitzpatrick and GeraldineMcCarthy. Springer Publishing Co., 2014, $70.00, 361 pages. ISBN 978‐0‐8261‐6404‐9.
  Brigitte S. Cypress
  Nursing Philosophy.2015; 16(3): 167.     CrossRef
• Meaning and existential givens in the lives of cancer patients: A philosophical perspective on psycho-oncology
  Joël Vos
  Palliative and Supportive Care.2015; 13(4): 885.     CrossRef
• Miss B Pursues Death and Miss P Life in the Light of V. E. Frankl's Existential Analysis/Logotherapy
  Béatrice Ewalds-Kvist, Kim Lützén
  OMEGA - Journal of Death and Dying.2015; 71(2): 169.     CrossRef
• The Effect of Social Support and Meaning of Life on the Quality-of-Life Care for Terminally Ill Patients
  Patricia Dobríková, Dušana Pčolková, Layla Khalil AlTurabi, Daniel J. West
  American Journal of Hospice and Palliative Medicin.2015; 32(7): 767.     CrossRef
• The Nature of Hope among Iranian Cancer Patients
  Rashed Afrooz, Azad Rahmani, Vahid Zamanzadeh, Farahnaz Abdullahzadeh, Arman Azadi, Safieh Faghany, Asgar Pirzadeh
  Asian Pacific Journal of Cancer Prevention.2014; 15(21): 9307.     CrossRef
• Effect of Suicidal Risk, Meaning in Life on Age-dependent Life Respect in Patients at Public Hospital
  Mi-Suk Wang, Sun-Suk Hwang, Hyun-Chul Jung, Suk-Jung Han, Kyung-Ah Kang
  Journal of Korean Public Health Nursing.2013; 27(1): 113.     CrossRef
• Effects of Logotherapy on Life Respect, Meaning of Life, and Depression of Older School-age Children
  Kyung-Ah Kang, Shin-Jeong Kim, Mi-Kyung Song, Mi-Jeong Kim
  Journal of Korean Academy of Nursing.2013; 43(1): 91.     CrossRef
• The Effects of Logotherapy on Meaning of Life of Early Adolescents with Cancer
  Shin-Jeong Kim, Kyung-Ah Kang, Sun-Jeong Park, Myung-Nam Lee, Young-Hee Kim
  Asian Oncology Nursing.2013; 13(1): 49.     CrossRef
• Logo-Autobiography and Its Effectiveness on Depressed Korean Immigrant Women
  Sunhee Cho, Kunsook S. Bernstein, Soonhee Roh, Daniel C. Chen
  Journal of Transcultural Nursing.2013; 24(1): 33.     CrossRef
• Stories of Suffering with Leprosy and Cancer in Korea
  Steven L. Baumann, Ok Ja Lee, Sook-Bin Im
  Nursing Science Quarterly.2013; 26(3): 274.     CrossRef
• A counselee-oriented perspective on risk communication in genetic counseling: Explaining the inaccuracy of the counselees' risk perception shortly after BRCA1/2 test result disclosure
  Joël Vos, Anne M. Stiggelbout, Jan Oosterwijk, Encarna Gomez-Garcia, Fred Menko, J. Margriet Collee, Christi J. van Asperen, Aad Tibben
  Genetics in Medicine.2011; 13(9): 800.     CrossRef
• The Effects of Logotherapy on Meaning in Life and Quality of Life of Late Adolescents with Terminal Cancer
  Kyung-Ah Kang, Jeoung-Sook Shim, Dae-Geun Jeon, Myung-Suk Koh
  Journal of Korean Academy of Nursing.2009; 39(6): 759.     CrossRef

PURPOSE
In this study, a comparison was done of the extent of health-related quality of life (HRQoL) for preterm and fullterm children during early childhood, and factors affecting HRQoL in the early childhood of premature children were analyzed.
METHODS
Eighty mothers of children born prematurely and 83 mothers of children born at fullterm listed on two Internet cafes were sampled for this study. The major instrument used for the study was the TNO-AZL Preschool Quality Of Life (TAPQOL) questionnaire.
RESULTS
Total score for HRQoL in the premature group was 80.5 (+/-9.9) and for the full term group, 85.0 (+/-8.3), on a 100-point scale. A comparison of the premature group and full term group showed that the domains which scored relatively lower with respect to HRQoL included the stomach, motor function, anxiety, liveliness and communication. Among the factors that have an impact on HRQoL were 'length of stay in neonatal intensive care unit (> or =7 days)' and 'birth weight (<1,000 gm)'. The explanation power of the model was 17%, which was statistically significant.
CONCLUSION
These findings indicate that a differentiated premature infant follow-up program for children who are hospitalized over 7 days in NICU or weighed under 1,000 g at birth is urgently needed.

Citations

• Addressing the Needs of Mothers with Infants in the Neonatal Intensive Care Unit: A Qualitative Secondary Analysis
  Ah Rim Kim
  Asian Nursing Research.2020; 14(5): 327.     CrossRef
• The Reliability of the Pediatric Functional Muscle Testing in Children with Developmental Delay
  Hye-Jung Seo, Joong-Hwi Kim
  The Journal of Korean Physical Therapy.2015; 27(4): 183.     CrossRef

PURPOSE
The purpose of this study was to examine relationship of preschool child and mother interaction, child's health status, health-related quality of life and social development. Also, it was intended to provide a basis for development of mother-child interaction programs.
METHODS
The present study was a descriptive research. Participants in this study were a convenience sample of 230 preschool children and their mothers. For the final analysis 209 questionnaires were used after eliminating questionnaires with incomplete responses. Data were analyzed using the SPSS 18.0 program.
RESULTS
The mean score for interaction between preschool child and mother was 3.96+/-0.55 out of 5 points, for child health status, 3.75+/-0.62 out of 5 points, for child's health-related quality of life, 83.89+/-10.20 out of 100 points and for child's social development, 19.66+/-3.57 out of 24 points. Positive correlations were found between interaction of preschool child and mother, child's health status, health-related quality of life, and social development.
CONCLUSION
The results demonstrate the importance of the quality of the relationship between mother, the child's primary caregiver, and her child for the healthy growth and development of preschool children. It is suggested that intervention programs for preschool child-mother interaction should be developed using evidence based data.

Citations

• The relationship between mothers' knowledge and practice level of cough etiquette and their children's practice level in South Korea
  Jungsun Kim, Sangeun Oh
  Child Health Nursing Research.2021; 27(4): 385.     CrossRef
• Relationship between paternal psychological distress and involvement in childcare among fathers of preschool-aged children: mediating effect of maternal psychological distress
  Hyeon Sik Chu, Hanyi Lee
  BMC Pediatrics.2019;[Epub]     CrossRef
• Parenting Stress and Maternal–Child Interactions Among Preschool Mothers From the Philippines, Korea, and Vietnam: A Cross-Sectional, Comparative Study
  Yong-Sook Eo, Ji-Soo Kim
  Journal of Transcultural Nursing.2018; 29(5): 449.     CrossRef
• Effects of Psychological, Parenting and Relational Characteristics of Mothers of Preschool Children on Their Depression Levels
  Hye Young Song, Won Jin Ju, Yanghee Pang
  Journal of Korean Academy of Community Health Nurs.2018; 29(4): 393.     CrossRef
• Model Structure for Mother-Child Relationship for Korean Infants and Toddlers and Their Mothers
  Sun-Jung Park, Kyung-Ah Kang, Shin-Jeong Kim
  Child Health Nursing Research.2017; 23(3): 268.     CrossRef
• Factors Influencing Parenting Stress in Mothers of Preschoolers Born Prematurely
  Sangmi Lee
  Child Health Nursing Research.2017; 23(4): 470.     CrossRef
• The Relationship Between Mother’s Child-Rearing Attitude, Language Control Styles, and Preschool Child’s Social Competence
  Sunghee Park
  Child Health Nursing Research.2016; 22(2): 97.     CrossRef

PURPOSE
This study was done to provide basic data for developing nursing interventions to enhance quality of life of pediatric patients with cancer (children and adolescents) by examining the quality of life and related factors.
METHODS
Participants were 134; 67 pediatric patients and 67 parents. The PedsQL(TM) 3.0 Cancer Module was employed to measure quality of life in the participants. The related factors included general and clinical characteristics of the participants.
RESULTS
Mean score for quality of life in the patients was 75.07, and mean score for patient quality of life as perceived by their parents was 64.40. Among the quality of life subscales, treatment anxiety had the highest score whereas nausea had the lowest score. Mean score in adolescent patients (13-18 years of age) was 71.62, lower than the 78.04 for child patients (8-12 years of age). Regarding general and clinical characteristics of the participants, there were no significant differences in the scores.
CONCLUSION
The results indicate that there is difference in perception of quality of life between patients and their parents, and between children and adolescents and these differences should be taken into account when planning and providing nursing care.

Citations

• The Effects of Illness Cognition on Resilience and Quality of Life in Korean Adolescents and Young Adults with Leukemia
  Ju-Young Lee, Dae-Chul Jeong, Nack-Gyun Chung, Sunhee Lee
  Journal of Adolescent and Young Adult Oncology.2019; 8(5): 610.     CrossRef
• A Validation Study of Child Health-6 Dimension (CH-6D), a Generic Preference-Based Health-Related Quality of Life Measure
  강은정, 한겨레
  JOURNAL OF THE KOREAN SOCIETY OF MATERNAL AND CHIL.2018; 22(1): 53.     CrossRef
• Health-Related Quality of Life in the Early Childhood of Premature Children.
  Eun Hee Lim, Hyeon Ok Ju
  Child Health Nursing Research.2015; 21(1): 37.     CrossRef
• The Effect of Perceived Parental Rearing Behaviors on Health-Related Quality of Life in Adolescents with Leukemia
  Dong Hee Kim, Nack-Gyun Chung, Sunhee Lee
  Journal of Pediatric Oncology Nursing.2015; 32(5): 295.     CrossRef

PURPOSE
The purpose of this study was to describe quality of life (QOL) in Korean school-age children by identifying dimensions and attributes of QOL from the child's point of view.
METHOD
In-depth interviews with focus questions were used for the study. Twelve children, aged 10 to 13 years, were recruited from Seoul and rural areas. The interviews were audio-taped and transcribed before content analysis. The data were analyzed for themes and attributes. The researchers read the data together and discussed their conclusions until a consensus was reached.
RESULTS
Eight dimensions, 57 subdimensions and 101atttributes were identified for QOL in school-age children. The eight dimensions of QOL were physical, social, emotional, learning, leisure, family, self-value, and material aspects.
CONCLUSION
The study results can be utilized in developing reliable instruments to measure quality of life specific to school-age children. It is proposed that a consistent and unified policy should be established by school, family, and community for the purpose of improving the QOL of school-age children.

The purpose of this article is to describe the overview of current medical treatments of childhood epilepsy in Korea and to review several recent nursing researches related to quality of life problems, especially psychological functioning in children with epilepsy and the stress of the family. The prognosis of childhood epilepsy has been improved considerably and about 80% of patients can now be expected to achieve complete seizure control by the antiepileptic drug treatment. Even for the intractable epilepsy, with the combination of ketogenic diet program and antiepileptic drug therapy or surgical treatment, the prognosis became very much better than before. The majority of research has reported that children with epilepsy were experiencing quality of life problems. They are at risk for impaired functioning, compared to either general population controls or to other chronic illness groups such as asthma and diabetes. The ultimate goal of providing care to children with epilepsy is to control seizures while facilitating an optimal quality of life for the child as well as the family. Recommendations are included for future research and intervention programs for children, parents and our society.

The purpose of this study was to find out the correlations between mother-adolescent communication and quality of life in the adolescents. The study subjects consisted of 171 adolescents who were going to middle school and high school. The data included general characteristics, health related characteristics, stress, mother-adolescent communication and quality of life. The data were analyzed by frequency, mean, percentage, t-test, ANOVA and Pearson's correlation using the SPSS statistical program. The result were as follows: 1. The mean score for the stress of adolescent was 2.48(maximum score: 5) and there were significant difference according to demographic variables that is sex, grade, father's being and health related variables that is health status, frequently ill, illness severity and illness of family. 2. The mean score for the mother-adolescent communication was 3.27(maximum score : 5) and there were significant difference according to demographic variables that is father's and mother's being. There were no significant difference according to any health related variables. 3. The mean score for the quality of life of adolescent was 3.97(maximum score : 7) and there were no significant difference according to demographic and health related variables. 4. There was a negative correlation between the stress and the quality of life. There was a positive correlation between the quality of life and the mother-adolescent communication. There was a no correlation between the mother-adolescent communication and the quality of life. Consequently, the implication for nursing of this study is that there is a need to develop relief strategy of stress for the female adolescents. And there is a need to develop a promoting program of quality of life for the adolescents considering the stress and the mother-adolescent communication.

The purpose of the study was to develop and test the model for the quality of life in mothers of children with nephrotic syndrome. A hypothetical model was constructed on the basis of previous studies and a review of literature. The conceptual framework was built around ten constructs. Exogenous variables included in this model were mother's health, father's health, marital intimacy, mother's attitude on children, economic state, side effect of steroid, severity of illness and social support. Endogenous variables were mother's burden and quality of life. Empirical data for testing the hypothetical model were collected by using a self-report questionnaire from 152 mothers of children with nephrotic syndrom at the outpatient clinics and in the hospital. The data was collected from May, 1999 to August, 1999. Reliability of the seven instruments was tested with Cronbach's alpha which ranged from 0.71 - 0.92. For the data analysis, SPSS 8.0 WIN program and LISREL 8.20 WIN program were used for descriptive statistics and covariance structural analysis. The results of covariance structural analysis were as follow : 1.The hypothetical model showed a good fit with the empirical data.[x2 = .56, df = 3, p = .90(p > .05 ), GFI = .99, AGFI = .99, RMSR = .005.] 2. For the parsimony of model, a modified model was constructed by deleting 1 variable and excluding 2 paths according to the criteria of statistical significance and meaning. 3.The modified model also showed a good fit with the data[x2 = 2.83, df = 7, p = .90( p > .05 ), GFI = 1.00, AGFI = .97, RMSR = .011]. The result of the testing of the hypothesis were as follows : 1.Mother's health( gamma 21 = .26, t = 4.16), father's health( gamma 22 = .19, t = 2.92), marital intimacy( gamma 23 = .26, t = 4.13) and social support( gamma 28 = .12, t = 2.03) had a significant direct effect on the quality of life. 2. Mother's burden( beta 21 = -.20, t = -3.10) had a significant negative direct effect on the quality of life. 3. Mother's attitude on children( gamma 14 = -.34, t = .-4.57), mother's health( gamma 11 = -.22, t = -2.96) and side effect of steroid ( gamma 16 = -.23, t = .-2.69) had a significant direct negative effect on the burden. The result of this study showed that mother's health, marital intimacy, mother's burden, father's health, and social support had a significant direct effect on the quality of life. Mother's attitude on children, mother's health, and side effect of steroid had a significant direct effect on mother's burden. These six variables, mother's health, marital intimacy, father's health, social support, mother's attitude on children and side effect of steroid were identified as relatively important variables. The results of this study suggest, it needed to determine the nursing intervention will alleviate mother's burden and promote a greater quality of life in mothers of children with nephrotic syndrom.

The purpose of this study were to identify the quality of life for the mothers of hospitalized chronic pediatric patients, and to explore the factors affecting the QOL of those mothers. The subjects were 201 mothers whose children had hospitalized at one University hospital with chronic diseases. Data were collected from the December, 1997 to December, 1998. We used a revised QOL instrument consisting of 34 items, 5 point likert scale based on the Noh's QOL instrument. The revised QOL consists of six subscales, those are physical status and function, self esteem, emotional status, economic status, relationship with family members, and relationship with neighborhood. Data were analyzed by t-test, ANOVA, Pearson's correlation using SPSS-PC. The results were as follows: 1. The mean score of quality of life for the mothers of chronic pediatric patients was 100.31, and item mean was 2.95. In subscale analysis, item mean of economic status was the lowest, and that of relationship with family members was the highest. 2.Correlations between characteristics of chronic pediatric patients, their mothers and QOL of mothers were as follows; 1) Total QOL of mothers had a significant positive relationship with progressing time relapse after diagnosing and age of mothers. There was a significant negative relationship between the total QOL of mothers and number of hospitalization of their children. 2) QOL on self esteem and economic status had a significant relationship with age of pediatric patients, the time relapse after diagnosis, and age of mothers. Total number of family members and QOL on economic status showed a significant positive relationship. QOL on emotional status, economic status, and relationship with family members of mothers showed negative correlations with the number of hospitalization of their children. 3. Followings were the result of difference in QOL among different demographic characteristics of the subjects. 1) QOL on economic status of mothers was significantly higher when fathers of pediatric patients had jobs. 2)Total QOL score, QOL on emotional status, and QOL on relationship with neighborhood were significantly higher when mothers of pediatric patients had spouses. 3)QOL on self esteem of mothers was significantly higher when mothers had religion. 4. Followings were the result of difference in QOL among different diagnosis of the children. 1)Total QOL score of mothers whose children had congenital heart disease was higher than that of mothers whose children had leukemia and cancer. 2)QOL on emotional status, economic status, and relationship with family members of mothers whose children had congenital heart disease were higher than those of mothers whose children had leukemia, cancer, and epilepsy.

The purpose of this study was to identity the level of burden and quality of life of the subjects. The subjects of this study were 68 mothers of nephrotic syndrome patients who children hospitalized in 2 Pediatric wards of University Hospital in Seoul. The data were collected through a questionnaires and the period of the data collection was from August 1st to September 30th ,1998. The instruments for this study were Burden Measurement Instrument developed by Montgomery et. al (1985) and Quality of life scale designed by Ro, Yoo JA (1988). The statistical analysis was used by SPSS, t-test, ANOVA and Pearson correlation coefficient. The results of were as follows : 1. The level of burden showed a mean score 54.47 and the level quality of life, a mean score 140.20. 2. The level of burden differed according to s religion, pt's purpose of admission and perceived patient's condition by mothers. 3. The level of quality of life differed according to perceived pt's condition by mothers. 4. There was a negative correlation between burden and quality of life(r=-3.97, p<.001).

PURPOSE
This study was conducted to identify the level of quality of family life, parental locus of control, and parental sense of competence, and to elucidate factors that influence family quality of life in the mothers of children with Attention Deficit/Hyperactive Disorder (ADHD).
METHOD
A convenient sample of mothers from 6 child psychiatric clinics was used in this cross-sectional survey design. Questionnaires used for data collection included the following scales: Family Quality of Life, Parental Locus of Control-Short Form Revised, Parental Sense of Competence.
RESULTS
The level of family quality of life was mid-range. A positive relationship was found between Family Quality of Life and the research variables. The significant predictors of family quality of life were parental locus of control, parental sense of competence, and duration of medication and these variables accounted for 21.8% of the variance in family quality of life.
CONCLUSIONS
These results indicate that family quality of life is an important factor which health care provider should assess and evaluate for children with ADHD and their families. The results of this study suggest that family quality of life is an important link with parental sense of competence and parental locus of control.

PURPOSE
The purpose of this paper was to develop a CD program of applied logotherapy to improve the quality of life of adolescents with terminal cancer.
METHOD
Keller's ARCS theory and a model for developing internet learning materials (Kang) used to develop this program was comprised of four distinct phases: planning, designing, development, and execution stages.
RESULTS
This program was entitled 'Finding treasures in my life' and consisted of 5 sessions and its educational content was as follows: Treasure One, 'learning the three natures of the human mind', Treasure Two, 'learning creative value as the first method to find meaning in life', Treasure Three, 'learning experiential value as the second method to find meaning in life', Treasure Four, 'learning attitudinal value as the third method to find meaning in life', and Treasure Five, 'Becoming the master of my own life'. The sub-menu was made up of 'Beginning', 'What is it?', 'Travelling'. 'Laughing Song', 'End'.
CONCLUSIONS
This CD program applied logotherapy with flash animation techniques as an emotional and spiritual nursing intervention program for easier and more scientific application in pediatric oncology and hospice care.

PURPOSE
This study was designed to construct a structural model to explain the quality of life of grandmothers caring for their grandchildren.
METHOD
Data were collected by self-report questionnaires from 232 grandmothers caring for their grandchildren living in Busan. The data collection period was from June to Oct. 2006. Data analysis was done with SAS 9.13 for descriptive statistics and PC-LISREL 8.52 program for Covariance Structural analysis.
RESULTS
The findings found that the fit of the hypothetical model to the data was good, but considering theoretical implications and statistical significances of parameter estimates, paths and variables of the model were modified by excluding 2 paths. The Modified Model with 17 paths showed a good fitness to the empirical data (chi-square =15.492 (df=11, p=.161), GFI=.985 AGFI=.940 NFI=.982 RMSR=.037 RMSEA=.042). Health status, health problems, economical status, life events, caring stress, caring efficacy and life satisfaction had significant effects on quality of life in the grandmother caring their grandchildren, but of these variables, self-esteem was the most essential factor. All predictive variables of quality of life together explained 63.9% of the variance.
CONCLUSION
The derived model in this study was confirmed to be proper in explaining and predicting the quality of life of the grandmothers caring their grandchildren.

PURPOSE
The purpose of this study was to examine the level stress in rearing children and quality of life of mothers of children with disabilities and to identify the relationship between stress of rearing these children and quality of life of the mothers.
METHOD
A descriptive, correlational study design was used. The participants in this study were 225 mothers of children with disabilities. With SPSS, t-test, ANOVA, and Pearson's correlation coefficients were used to analyze the data.
RESULTS
1) The mean score for maternal stress in rearing children with disabilities was 3.46, and for quality of life, 2.80. 2) Stress in rearing these children had a negative correlation with quality of life (r=-.761, p=.000). CONCLUSION: It is suggested that intervention programs to decrease the stress of rearing these children and increase the quality of life should be offered to mothers of children with disabilities.

Purpose
The purpose of this research was to examine the degree of care stress and the quality of life of grandmothers caring for their grandchildren while mother was employed. Method: A convenience sample of 107 grandmothers were measured for grandmother's care stress using a revised for of the PSI/SF and the quality of life tool by Andrew and Weinert. Descriptive statistics, t-test, and Pearson correlation coeffcients were used to analyze the data using SPSS/PC 10.0 Results: The results found that grandmothers' care stress was high according to their age and religion. Their quality of life was low according to their age, their present health status, income and sleep pattern. Their subjective care stress was a sense of social isolation, burden of caring for grandchildren, health problems, and conflict with adult children. Care stress and quality of life were found to be negatively correlated. This result was statistically significant. Conclusion: In conclusion, it was found that the care stress was high and affected quality of life. From this study it is proposed that there is a need to develop programs which consider grandmother' techniques in child care and health care to improve their quality of life. Ultimately, a good care environment for children will be good for the children's growth and development.

Purpose
The purpose of this study was to describe the relationship between resilience and health-related quality of life and to identify the effect of resilience on health-related quality of life in children with chronic illness. Method: The participants in this study were 71 children who were seen at one of 3 hospitals, either in outpatient clinics or as admitted patients. The data were collected from March to October, 2005 and descriptive statistics, t-test or ANOVA, Pearson correlation coefficient and stepwise multiple regression were used to analyze the data. Result: Health-related quality of life was slightly low with a mean score of 2.85 (range 1-5). Health-related quality of life was significantly different according to age. There was a significant correlation between resilience and health-related quality of life. Resilience was a predictor of health-related quality of life and accounted for 45% of the variance. Conclusions: Resilience was shown to influence health-related quality of life of children with chronic illness. These findings suggest that the interventions to enhance resilience would be effective for the improvement of health-related quality of life.

PURPOSE
The purpose of this study was to explore family function,social support, perceived quality of life (QOL) in adolescents and to identify correlations between family function, social support, and the perceived QOL.
METHOD
The questionnaire to obtain the data consisted of questions on general characteristics of the adolescents, 20 questions on family function, 11 questions on social support, and 8 questions on perceived QOL in adolescents. The participants were 128 adolescents who were living in S area. The data were analyzed using percentages, means, t-test, ANOVA and Pearson' correlation coefficients. The WINSPSS program was used to assist in data analysis.
RESULTS
The mean score for family function was 3.07 (out of 5) and there was a significant difference between middle and high school students. The mean score for social support was 2.86 (out of 5) and there were no significant differences. The mean score for perceived QOL was 4.02 (out of 7) and there was a significant difference according to physical health. There was a positive correlation between family function, social support, and perceived QOL in adolescents.
CONCLUSION
The results indicate a need to develop programs, policy assistance and implementation to strengthen factors contributing to a high perceived quality of life in these adolescents