Purpose This study aimed to conduct a concept analysis of health-related quality of life in children with epilepsy to promote conceptual clarification and facilitate mutual understanding of the concept.
Methods Walker and Avant's concept analysis method was adopted.
Results Health-related quality of life in children with epilepsy consists of six attributes: health status, inner strength, close relationships, resource-rich community, social acceptance, and changeability. According to the ecological system paradigm, these attributes are structured into five dimensions: organism, microsystem, macrosystem, exosystem, and chronosystem. These dimensions provide a comprehensive approach to the relationship between children with epilepsy and their environment. Epilepsy and interactions with multilevel ecological systems that are directly and indirectly related to children with epilepsy precede the concept, followed by positive and negative affective responses.
Conclusion The findings of this study may support effective communication in various practice settings, thereby contributing to the health and well-being of children with epilepsy, as well as the development and expansion of interventions to improve their health-related quality of life.
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Purpose Epilepsy is the most common neurological disorder in childhood. Hospital nurses, who are the first to recognize seizures in epilepsy patients in the ward environment, possess expertise related to epilepsy and play a central role in epilepsy management. The purpose of this study was to develop an algorithm-based education program and to improve nurses’ knowledge and self-efficacy related to providing nursing care to children with epilepsy.
Methods The education program consisted of lectures on the definition, cause, classification, diagnosis, treatment, and nursing of epilepsy based on a booklet, as well as practice using an algorithm for nursing interventions when a child experiences a seizure. Twenty-seven nurses working at pediatric neurological wards and a pediatric emergency room participated in the education program. The data were analyzed using descriptive statistics and the paired t-test.
Results Nurses’ knowledge and self-efficacy showed a statistically significant improvement after participation in the education program on nursing care for children with epilepsy.
Conclusion The application of this education program for hospital setting is expected to improve nurses' capability to care for children with epilepsy, thereby contributing to a higher quality of nursing.
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Purpose This study was done to explore disease factors in children with epilepsy, parental factors and resource factors that are related to parenting stress and identify effects of each factor on parenting stress.
Methods Participants were 131 parents who had children who visited a hospital or were hospitalized due to epilepsy. Data collection was done between September 17 and November 17, 2012, and self-report surveys were used.
Results In Stepwise multiple regression analysis, factors influencing parenting stress in children with epilepsy were marital communication, educational background of parents, parenting efficacy, children’s development delay, drug treatment and surgical treatment as a method of epilepsy treatment. These factors explained 34.6% (F = 13.22, p < .001) of the variance in parenting stress.
Conclusion The findings indicate that parental factors (educational background of parents and parenting efficacy) and resource factors (marital communication) have higher explanatory power than disease factors of the children. Thus, it is importance to assess the capacity of parents through self-evaluation, and to assess barriers to marital communication when developing parenting stress intervention programs. Furthermore, both parents should be involved in interventions for parenting stress.
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Development of a parent questionnaire to assess treatment adherence for a child or adolescent with epilepsy Juna Lee, Ju Young Yoon Epilepsy & Behavior.2023; 140: 109112. CrossRef
Structural Equation Modeling for Quality of Life of Mothers of Children with Developmental Disabilities: Focusing on the Self-Help Model Mi Ran Yang, Mi Yu Journal of Korean Academy of Nursing.2022; 52(3): 308. CrossRef
Purpose The purpose of this study was to evaluate levels and correlations of epilepsy specific knowledge, attitude and anxiety in mothers of children with epilepsy.
Methods Participants were 176 mothers of children with epilepsy living in B and Y cities. Data were analyzed using descriptive statistics, t-test, ANOVA, and Pearson correlation coefficients with the SPSS 21.0 program.
Results Participants scored 57.2 (±1.7) out of 100 points on epilepsy-related knowledge; 35.6 (±5.0) out of 48 points on attitude toward epilepsy; 58.1 (±15.3) out of 85 on anxiety related to a child’s epileptic condition. The participants had higher levels of epilepsy-related knowledge if their family monthly income was three million KRW or higher (t = -2.92, p = .004); if there was no side effect from the medication (t = -2.91, p = .004); and if the mothers’ perception of the child’s health was good (F = 6.181, p = .001). There was a positive correlation between knowledge and attitude related to epilepsy (r = .321, p < .001), and a negative correlation between knowledge and anxiety (r = -.257, p = .001).
Conclusion Findings indicate that interventions which reduce mothers’ anxiety by providing epilepsy specific knowledge and help to achieve more positive attitudes to better ways of coping with child’s disease.
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Investigating family resilience factors for enhancing family adaptation in children with epilepsy Hyejun Kim, Anna Lee, Mina Park, Eun Kyoung Choi Epilepsy & Behavior.2024; 156: 109817. CrossRef
The purpose of this article is to describe the overview of current medical treatments of childhood epilepsy in Korea and to review several recent nursing researches related to quality of life problems, especially psychological functioning in children with epilepsy and the stress of the family. The prognosis of childhood epilepsy has been improved considerably and about 80% of patients can now be expected to achieve complete seizure control by the antiepileptic drug treatment. Even for the intractable epilepsy, with the combination of ketogenic diet program and antiepileptic drug therapy or surgical treatment, the prognosis became very much better than before. The majority of research has reported that children with epilepsy were experiencing quality of life problems. They are at risk for impaired functioning, compared to either general population controls or to other chronic illness groups such as asthma and diabetes. The ultimate goal of providing care to children with epilepsy is to control seizures while facilitating an optimal quality of life for the child as well as the family. Recommendations are included for future research and intervention programs for children, parents and our society.
, Kyung-Sook Bang
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